Sunday, June 16, 2024
Sunday, June 16, 2024
HomeQuestionsHow To Support Someone With Parkinson's Disease

How To Support Someone With Parkinson’s Disease

How To Help Someone With Parkinsons Disease Thrive

How can dancing help someone with Parkinson’s Disease?

The symptoms of Parkinsons can have a significant impact on physical, mental and social abilities, but family caregivers can make life much easier for seniors who are living with this condition. By learning about PD and planning ahead, a caregiver may be able to anticipate changing needs and abilities and resolve issues before they negatively affect a loved one. Taking proactive steps to ensure a PD patients safety, extend their independence and preserve their functional abilities will help them remain in their own home longer and have a beneficial impact on their overall quality of life.

Physical And Mental Changes To Expect

  • Physical changes may include: Tremor; slowness of movement; stiffness of the arms, legs or trunk; balance problems; freezing of gait; small, cramped handwriting; reduced arm swing; loss of facial expression; softness of voice; tendency to fall backwards; walking with a series of quick, small steps; constipation; erectile dysfunction; bladder control problems; drooling; sleep problems; loss of sense of smell; vision changes; and restless leg syndrome.
  • Mental changes may include: Difficulty with attention, focus, planning, multitasking; visual spatial functions ; apathy or lack of motivation; hallucinations and/or delusions ; impulsive behavior ; problems with memory.
  • Emotional changes may include: Anxiety and depression.

Find Out How Well They Are Sleeping

It is vital to know if they are getting enough sleep every night. Why? Please think of the brain like a sponge filling up with fluid all-day long; during our time to sleep, we squeeze the excess liquid out and restore/refresh our mind. Insomnia is shared from both treatments and as a clinical feature of Parkinsons.

Also Check: Parkinsons Disease Gene

Caregiving For People Living With Parkinsons

Caring for a loved one with PD can be a challenging job, especially as the disease progresses. Former caregivers of a loved one with PD suggest doing the following : Get prepared, Take care of yourself, Get help , Work to maintain a good relationship with your loved one, and Encourage the person with PD for whom you care, to stay active.

Preparing for caregiving starts with education. Reading this fact sheet is a good start. More resources are available to you in theResources section of this fact sheet. Early Parkinsonâs disease usually requires more emotional support and less hands-on care. It is a good time for family members/caregivers to educate themselves about the disease.

The Pencil Grip Heavyweight Mechanical Pencil Set Tpg

BIG therapy is making a big difference for people with ...

Make your loved one’s day-to-day a little easier, starting with their writing utensils.

Accomplishing tasks can take longer due to slowness of movements, explains Dr. Nwabuobi. Writing and performing other fine motor tasks such as putting on jewelry or shaving can become more laborious due to tremor. Weighted pens are a great way for those with Parkinsons to cut down on tremors and gain better control of their hand while writing, making the process easier and handwriting more readable.;

This weighted pen from The Pencil Grip is said to help people develop better motor control and build up strength through regular use. It weighs four ounces to add a nice level of heftiness and bring a smooth finish to any writing efforts.

Upon diagnosis, Dr. Nwabuobi advises all her patients to become physically active and start a fitness regimen. Ideally, exercise should include stretching, aerobic activity, and resistance training. I tell patients to do what they love as long as they are increasing their heart rate and breaking a sweat. This can include speed walking, dancing, yoga, swimming, cycling, boxing, pilates, etc., she adds. An apple watch is a great way for Parkinsons patients to not only keep track of their exercise habits, but all their daily movements. It also monitors heart rates and irregular irregular heart rhythms. Honestly, theres nothing like a new, shiny device meant to encourage physical activity to make you get up and move.

Also Check: Stages Of Parkinson Disease Life Expectancy

Naturalremedy For Parkinsons #10 Foods You Must Avoid

There are certain foods that are known to worsen thesymptoms of Parkinsons and certain foods that are known to help. Healthadvocate, Dr Joseph Mercola, says that Parkinsons disease is primarily relatedto poor lifestyle choices, particularly poor dietary habits. Increasing yourbodys natural dopamine levels is also extremely important in your fight againstPD.

The foods and liquids you should be eating and drinkingmore of to help you along include:

·;;;;;;;;Clean Filtered Water Clean filtered water helpsto flush toxins from the body and hydrate the cells .Try and aim to drink at least two liters of water every day, and under nocircumstances drink tap water! Tap water is laced with toxic fluoride and otherchemicals and heavy metals so NEVER drink it. Buy yourself a good quality waterfilter. Its worth the investment. ;;

·;;;;;;;;Whole Foods and Raw Foods Eat plenty oforganic mixed berries, green leafy vegetables, liver , fish,eggs, nuts and seeds such as chia and flaxseeds, along with plenty of herbs andspices. When it comes to buying any of these remember fresh is alwaysbest.;;

·;;;;;;;;Consume Lots of Probiotics Good gutbacteria are needed for strong immunity and healthy digestive function, whichin turn produces healthy brain and nerve function. You can learn how to makeyour own probiotic rich foods such as kefir, sauerkraut, kombucha and yogurt hereCultures for Health.;;

The foods you should be avoiding or not eating at allinclude:

Be Honest With Each Other

A trap some caregiver-patient partners can get into is one person becoming the nurse while the other is demoted to helpless patient. Thats not productive and can end up being harmful if, for example, the caregiver takes on responsibilities that the person with Parkinsons is perfectly capable of doing.

As a caregiver, try to start an open dialogue for tough conversations with your loved one where you come to an agreement about when the loved one truly needs help.

Read Also: What Can You Do To Help Parkinson’s Disease

How To Communicate With Your Loved One Who Has Parkinson’s

If you are caring for a loved one with Parkinsons disease, you are probably familiar with two of the hallmark physical symptoms: tremors and impaired gait.

Unfortunately, the disease also affects a person’s ability to communicate, which can be frustrating for both caregivers and your loved one with Parkinsons.

As with many aspects of caregiving, the more you know, the better you can handle challenges. Improving communication with people who have Parkinson’s is possible.

S For Caring For A Person With Parkinsons Dementia

How dancing the tango may help people with Parkinson’s Disease

Parkinsons disease is known for its associated motor symptoms, such as tremor and slowed movement. People can be surprised to learn that cognitive changes are among common PD non-motor symptoms. Significant cognitive impairment can impact care partners, too. Education and healthy coping strategies ensure everyones best care.

The following article is based on a Parkinsons Foundation Expert Briefings webinar exploring care partner strategies to identify and help people with PD dementia, hosted by Joseph Quinn, MD, a neurologist at Parkinsons Foundation Center of Excellence Oregon Health & Science University and the Portland VA Medical Center. Dr. Quinn, the Parkinsons Center director for both institutions, focuses his research on cognitive decline prevention and dementia treatment.

What is PD Dementia?

Mild cognitive impairment is very common with Parkinsons disease. It can impact memory and thinking but doesnt always affect daily activities. Dementia, however, is when cognitive changes impact daily living. Dementia may or may not occur in people with PD. According to recent research, 30 percent of people with Parkinsons do not develop dementia as part of the disease progression.

The different types of dementia include:

Parkinsons Disease Dementia and Lewy Body Dementia Family Checklist

  • Get Parkinsons dementia education, including:
  • Medical advice a physician can give diagnosis, outlook and treatment guidance.
  • Recommended Reading: What Is Bradykinesia In Parkinson’s

    How Is Parkinsons Diagnosed

    Doctors use your medical history and physical examination to diagnose Parkinsons disease . No blood test, brain scan or other test can be used to make a definitive diagnosis of PD.

    Researchers believe that in most people, Parkinsons is caused by a;combination of;environmental and genetic;factors. Certain environmental exposures, such as pesticides and head injury, are associated with an increased risk of PD. Still, most people have no clear exposure that doctors can point to as a straightforward cause. The same goes for genetics.;Certain genetic mutations are linked to an increased risk of PD. But in the vast majority of people, Parkinsons is not directly related to a single genetic mutation. Learning more about the genetics of Parkinsons is one of our best chances to understand more about the disease and discover how to slow or stop its progression.

    Aging is the greatest risk factor;for Parkinsons, and the average age at diagnosis is 60.;Still, some people get PD at 40 or younger.

    Men are diagnosed with Parkinsons at a higher rate than women and whites more than other races. Researchers are studying these disparities to understand more about the disease and health care access and to improve inclusivity across care and research.;

    Aging is the greatest risk factor;for Parkinsons, and the average age at diagnosis is 60.;Still, some people get PD at 40 or younger.

    The Michael J. Fox Foundation has made finding a test for Parkinsons disease one of our top priorities.

    Challenges You As A Caregiver Are Likely To Face

    There are challenges that a person with Parkinson’s disease confronts. First, the disease can vary from day to day. There will be times when they can function almost normally and then other times when they will be very dependent. This is a natural part of the disease. But it can make a caregiver feel that the person is being unnecessarily demanding or manipulative. Keep in mind that Parkinson’s is unpredictable and each day can pose new challenges for you and your loved one.

    Also, keep in mind that Parkinson’s is a progressive disorder. While medications and surgery can provide significant relief of symptoms, they do not stop the progression of the disease.

    Depression is also very much a part of the disease. It is important to recognize the signs and symptoms of depression so you can help your loved one seek treatment promptly. And, if you are feeling depressed and having trouble coping, it’s just as important to get care for yourself.

    Don’t Miss: How To Manage Parkinson’s Disease

    The Complete Mediterranean Cookbook

    Most health conditions come with a few lifestyle changes. For Parkinsons, changing your diet is highly recommended. Dr. Nwabuobi advises patients to incorporate lots of vegetables, high fiber, nuts, legumes, and whole grains into their diet. Due to these elements, a Mediterranean diet is a good model for how to start. The Complete Mediterranean Cookbook comes with over 500 recipes that bring the best of Morocco, Egypt, Turkey, Lebanon, Greece, and more to your kitchen. Each recipe puts a new twist on the traditional Mediterranean diet and makes meals easy to cook, which is perfect for weeknight dining when energy is already low.

    Complex Parkinson’s Disease And Palliative Care

    9 Organizations That Support Parkinson

    Complex;Parkinson’s disease is defined as the stage when treatment is unable to consistently control symptoms, or the person has developed;uncontrollable jerky movements .

    These problems can still be helped by adjustment or addition of some of the medications used to treat Parkinson’s disease,;under the;supervision;of a doctor with a specialist interest in Parkinson’s disease.

    As Parkinson’s disease progresses, you’ll be invited to discuss the care you want;with your healthcare team as you near the end of your life. This is known as palliative care.

    When there’s no cure for an illness, palliative care tries to alleviate symptoms, and is also aimed at making the end of a person’s life as comfortable as possible.

    This is done by attempting to relieve pain and other distressing symptoms, while providing psychological, social and spiritual support for you and your family.

    Palliative care can be provided at home or;in a hospice, residential home or hospital.

    You may want to consider talking to your family and care team in advance about where you’d like to be treated and what care you wish to receive.

    Don’t Miss: What To Eat With Parkinson’s Disease

    How To Start Exercising If Youre Living With Parkinsons

    Safety is key. The first thing you need to do is talk with your neurologist and primary care doctor to make sure that the exercise regimen that you embark upon is safe for you.

    Next, ask for a referral for physical therapy. A physical therapist will be able to figure out what movement challenges you may have and design a program to help you improve. There are certain physical therapists with additional training in Parkinsons. Your physical therapist will work with you for your allotted sessions, and then can help you plan your ongoing exercise regimen that is tailored to you. You can contact the APDA National Rehabilitation Resource Center for Parkinsons Disease for help finding resources in your area.

    Additionally, physical therapy can help counteract the tendency for people with PD to reduce the size of their movements. ;The Lee Silverman Voice Technique has designed a program called LSVT-BIG which trains participants to make big movements. You can search for an LSVT-trained professional near you.

    Anyone starting out on an exercise program could benefit from APDAs Be Active & Beyond;exercise guide which includes clear photos with simple instructions that are easy to follow, with exercises that address all levels of fitness.

    How To Be A Good Spouse When They Have Parkinsons

    July 28, 2020 by Zach Galati

    Being a good caregiver to someone with Parkinsons can be a difficult job. If the person you are giving care for is your spouse then this can be like tiptoeing on eggshells. So, I wanted to share some of the tips and tricks I have learned from being a caregiver to a spouse with Parkinsons over the last few years. These tips have helped our marriage not only avoid breaking down but have helped our marriage flourish.

    Making sure they take medications

    Something helpful I do for my spouse is to remind him to take his medications. We set up alarms on his smartphone so that he is reminded when to take his medication. We bought weekly pill boxes with 3 compartments per day and set them up a week at a time. This makes it really easy to see if my spouse has taken their medication or needs help remembering. I can also encourage my spouse on days when taking medication can feel like too much of a chore.

    Assisting them in getting to the doctors

    Depending on where your spouse is at, they may not be able to get themselves to their doctors appointments. I usually drive my spouse to the doctors office or hospital, and he has agreed for me to come into his appointments with him. I usually jot down notes of what is said to make sure we dont forget, and we can talk it over again when we get home. However, arranging someone else to come and give them a ride to the doctors is also a great way to help out your spouse and give them less to worry about.

    Don’t Miss: Is Sugar Bad For Parkinson’s Disease

    Natural Remedies And Treatments For Parkinsons Finalnote

    So there you have our top 10 natural remedies andtreatments for reversing Parkinsons disease. We believe this is one of the most informative andthorough health articles on this disease youll find anywhere on the internet. Ifyou follow these 10 tips to-the-letter and continue to use them consistently,we guarantee that in 3-6 months time you will be truly astounded at themiraculous level of improvement youll see. In 12 months time you will scarcely;recognize yourself! . But of course, you must stickwith them and follow through with each remedy every day if you want them towork. We sincerely hope you do.

    Good luck and best wishes.

    P.S.;Because Parkinsons is closely linked to Alzheimers disease and actually goes under the dementia umbrella, we recommend you take the time to read our Powerful Natural Remedies for Dementia and Alzheimers article for a more complete and comprehensive understanding on the causes and treatments for these diseases. You can click on the link below to go there

    Kevin Resisted Joining The Local Group Because He Thought It Would Be Full Of Old People He

    Providing support to people with Parkinsonâs Disease

    I went down to London to Parkinsons Disease Society headquarters in Victoria about six, nine months ago because theres like, theres was a, there was a research establishment in there giving a lecture on stem cell research.;And when I was down there, I met a few young people, and some of those young people hadnt joined their local Parkinsons Society because there were basically, mostly older people. Theyd like to join the society if it was for, you know, a young persons society, which Id like to do. But;theres not one about.;But having said that, the society here in is really good, very good.

    ;Before the first time you went to that, how did you feel about going to it beforehand?

    ;I felt that it wasnt for me, its for older people. I had this vision of people in their, all being in wheelchairs, I was nicely surprised that I had trouble spotting in the room who were the carers and who had symptoms because theyre all on drugs, apart from one or two people in wheelchairs shaking away.;I never envisaged that I would go back again but Ive been going every since. I think its a really, really good idea.

    You May Like: Can Young Adults Get Parkinson’s Disease

    Nicolas Made Some Contacts Through The Pds And Feels That You Can Learn More From Other People

    From the PDS website, I managed to get in touch with a PDS branch and the nurse practitioner, which was very useful. So by making a few phone calls, I got some confidence with a few people in a similar position. I went along to the branch meeting.;Met one or two other younger people in a similar situation and from there we formed a good social grouping and a contact group, which is very helpful in exchanging information on medication and other features and factors of the disease. And you find that there are many more people than you imagine who have got Parkinsons disease. So recommend the support of the local branch.

    ;Parkinsons disease affects a lot of people in a lot of different ways, and its interesting to find out what range of knowledge there is. For example, I wasnt initially put on medication and lots of people were talking about medication and I thought, I didnt quite understand what was going on. Now Im on medication, I take more interest in that sort of thing. But a lot of that is the experiences of the people around the patch.;Nurse practitioners quite helpful, but I found the best source of information are other people with Parkinsons disease.

    bit of a hermit

    RELATED ARTICLES

    Popular Articles