Saturday, July 20, 2024
Saturday, July 20, 2024
HomeParkinson Association Of The Carolinas

Parkinson Association Of The Carolinas

Goodcell Allows You To Store Cells From Your Own Blood For Your Personalized Medicine

Getting Expert Parkinsons Disease Care in Eastern North Carolina

Your blood contains many cell types, including stem cells, that can potentially be used in cutting-edge therapies that will be available in the near future.

Stem cells have the unique ability to regenerate themselves as well as develop into the more specialized cells in the human body. This means they may be used to generate new healthy cells to treat disease.

Ryan Roach President & Founder

Born into the sport of boxing through his family ties, Ryan Roach founded Punch 4 Parkinsons after seeing firsthand how boxing workouts could reduce symptoms of Parkinsons disease and help those suffering from Parkinsons live a more normal life. Ryan is nephew of hall of fame boxing coach Freddie Roach, who is afflicted with the disease. With a strong philanthropic moral compass, Ryan leveraged his expertise in the field to start up P4P and offer support to the PD community.

Ryan is also a Lieutenant in the Boston Fire Department and a successful professional Boxing Manager at Fighter Locker. Prior to this, Ryan spent 8 active years with the United States Coast Guard and an additional 4 in the reserves. Currently residing in Boston with his wife, 2 children, and 2 dogs he loves spending time with his family and helping the community.

Punch 4 Parkinsons is an organization dedicated to developing immersive, non-combat boxing training and exercise programs for individuals with Parkinsons. Through charitable donations, P4P has sponsored over 400 Parkinsons Warriors and provided them with hands-on training by partnering with carefully vetted boxing training centers sanctioned by USA Boxing, Inc. At P4P, we are dedicated to helping our Warriors slow and oftentimes reverse the progression of symptoms of the disease, allowing them to live happy and healthy lives.

Interdisciplinary Team Of Experts

The Parkinsons Foundation Center of Excellence at UNC offers patients and their families comprehensive, specialized care for Parkinsons disease. Our interdisciplinary team of experts is trained to address the physical, cognitive, and emotional needs of those coming to our clinic. We actively work with patients and their families to develop individualized treatment plans and recommendations.

Our team includes specialists from the following areas:

  • Neurology/Movement Disorders

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Impact Update: Checking In With The Parkinson Association Of The Carolinas

The Parkinson Association of the Carolinas has nearly doubled fundraising & is serving 1,500 more individuals.

We were overwhelmed with what to do with technology and how to grow our organization using it, explains Ann Marie Worman, Executive Director of The Parkinson Association of the Carolinas , regarding her decision to reach out to Apparo for help in 2018.

Apparo staff scoped a skilled volunteer engagement to support PAC with a technology assessment and plan. Through Apparos Epic Community Impact Project program, PAC was matched to an individual volunteer, Johann Vaz. An Epic Change Agent, Rhonda Evans, facilitated the project.

L to R, Johann Vaz, Ann Marie Worman, Rhonda Evans, Nicola Main

We checked in recently with Anne Marie. She shares her story of working with Apparo:

As we began the process, we realized how much we didnt know and how much we had to think about it. Our Change Agent, Rhonda, ensured that we understood every step along the way. The recommendations we received from Johann were all realistic for our organization to take on. I refer to the technology plan frequently, its my 3-5 year roadmap. It improves my planning, as I consider which improvements need to be taken on next. I am much more forward thinking about technology.

We also:

These improvements help enable our growth. Weve added 1,500 new people to our support community this year.

How Do I Get My Blood Drawn

Poker 4 Parkinson

You can schedule an appointment at any Quest Patient Service Center once you have received your GoodCell Kit. Click here to find a convenient location near you:

If you are unable to get to a Quest Patient Service Center, we can send a certified phlebotomist who will draw your blood in the comfort of your home or office.

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Security Standards You Can Trust

Our labs are CLIA- and CAP- certified, ensuring proper handling and secure storage of your cells. The facility that houses your biomaterials uses temperature-regulated storage devices that are alarmed and monitored around the clock. It stores millions of samples and is trusted by the National Institutes of Health and the largest pharmaceutical companies in the U.S.

Alliance Of Independent Regional Parkinson Organizations

© Parkinson Association of the Carolinas. Website by Rabell Creative.

As of July 1, 2021, Yoga has resumed its in-person classes, and we still offer a Zoom option as well. The information for those programs can be found here — — and is sent out in our Weekly Program Update on Fridays and the monthly newsletter.

To receive our newsletter and emails, go to the About Us tab at the top of our website and select Join Our Email List. In the meantime, our staff continues to work to provide resources and information to you.

Please reach out to us via phone at 245-2786 or email at pac@parkinsonassociation.org. You will be directed to the right person.

WE ARE HERE FOR YOU!

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Parkinsons Foundation Center Of Excellence

The Department of Neurology at UNC has been actively caring for patients with Parkinsons disease since the opening of the North Carolina Memorial Hospital in 1952. In 2004, the UNC School of Medicine and UNC Hospitals became the first medical center in North Carolina to join the ranks of only 47 Parkinsons Foundation Centers of Excellence worldwide.

The Parkinsons Foundation supports Parkinsons-related research, patient care, education, training, and outreach through its centers of excellence. As such, the centers define the gold standard in Parkinsons-related research, comprehensive care and outreach. Learn more about the Parkinsons Foundation and the Parkinsons Foundation Center of Excellence criteria.

What Is A Usability Study

Parkinson’s Disease & Medication – What’s New

Usability testing or a usability study is when a medical product or service is tested with representative users. Typically, this will involve participants completing related tasks while observers watch, listen and takes notes.

The goal is to identify any problems in using the product or service , collect information and feedback, and determine the participants satisfaction with the product or service.

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Parkinson Association Of The Carolinas

The overarching goal for the Parkinson Association of the Carolinas is to help support people with Parkinsons disease throughout North and South Carolina so that they can remain independent and stay active in the community until a cure is found. The organization uses its resources and expertise to support, educate and empower those impacted by the Disease. They give patients the tools needed to better manage the disease and to allow them to maintain the highest quality of life, for as long as possible.

Things You Must Know About Retiring To The Carolinas

From the picturesque beach towns to cozy mountain communities, North Carolina and South Carolina offer retirees plenty of incentives.

I left New York state in early 2013 and landed in northern Virginia to continue my career. Now, with thoughts of retiring within the next few years, I considered the Carolinas as a possible taxes-light retirement destination before recently settling in a new home in the Shenandoah Valley of Virginia. It’s our future retirement pad. However, increasingly more friends are opting for the Carolinas as they edge near to or into retirement.

Indeed, North Carolina and South Carolina rank high on the list of potential new retirement homes for boomers like me. Both states are in the top five for net migration of people 60 and older, according to the Census Bureau. In 2018, North Carolina was No. 3, behind Florida and Arizona . South Carolina was No. 5, behind Texas .

For this feature, we interviewed retirees who have recently relocated to the Carolinas, as well as real-estate and insurance agents who welcome new retirees to the region every year. Andrew and Lynn Lazar, for instance, sold their longtime home in Hillsborough, N.J., and landed in Latitude Margaritaville Hilton Head, in Hardeeville, S.C., last year. Its an active adult community catering to Parrotheads, the devoted fans of singer-songwriter Jimmy Buffett .

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What Are Parkinsons Support Groups

Parkinsons support groups are a gathering of people with common experiences or concerns who provide each other with encouragement, comfort, and advice. Support groups are also a place to give and receive emotional and practical support to others who are in the same situation. Parkinsons support group meetings provide you with a chance to:

Annual Move It Walk For Parkinsons Disease

Meet Our Team

Get involved in our annual Move It! Walk or one of several other fundraising and awareness events throughout the year.

Bring in the New Year with a Sense of Order!

Understanding the Differences between COVID-19, the Flu, and the Common Cold

Volunteer Spotlight

Board of Directors Welcomes 3 New Members! Julie BoltAging Life Care Association Julie holds a Master of Science in Gerontology with read more about Volunteer Spotlight

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What Is Parkinsons Disease

Parkinsons disease is a progressive neurodegenerative disorder that affects the brain and causes a progression of symptoms including tremors, slowness of movement, limb rigidity, as well as gait and balance problems. The cause remains largely unknown. Although there is no cure, treatment options vary and include medications and surgery. While Parkinsons itself is not fatal, disease complications can be very serious. The Centers for Disease Control and Prevention rated complications from PD as the 14th cause of death in the United States.

P4p Motivation & Story

Punch 4 Parkinsons is the brain-child of professional boxing manager Ryan Roach, who was inspired by boxing great Freddie Roach , as well as civil rights activist Jesse Jackson, both who suffer from Parkinsons. Freddie was diagnosed with Parkinsons at the age of 27 and credits the physical nature of his job and the hand-eye coordination of the sport for keeping his symptoms in-check. When Jesse Jackson was diagnosed with Parkinsons in 2017, Freddie, who had been battling the disease for 3 decades by then, reached out to invite Jackson to train with him.

When he got here, he could barely climb the steps to the ring, the elder Roach has said of Jackson. After 10 days of training, he wanted to race me. Both men attribute boxing with offsetting some of the devastating effects of Parkinsons disease.

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What You Get With Goodcell

  • Round trip shipping of your GoodCell kit

  • Blood draw at a Quest facilityor arrange for a mobile phlebotomist by request

  • Storage of your cells and DNA in our state-of-the-art personal biobank

  • Proprietary processing of your sample

  • Personal customer support

  • Private dashboard to view your personal inventory

  • Access to additional tests as they become available

  • News, information and research about relevant therapies

What people are saying

Have Your Blood Drawn

Parkinson’s Disease Exercises: Balance

Schedule a blood draw at one of the 3,000+ nationwide Quest Diagnostics centersor contact your MRM for other options. Quest will ship your sample to our labs.

Your most valuable biomaterial is extracted from your blood. We isolate specific cells that will be most therapeutically beneficial based on clinical trials in progress and store them at our secure facilities.

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How Boxing Can Help People With Parkinsons

High intensity exercise is proven to be beneficial for slowing the progression of Parkinsons as well as other chronic diseases including MS and ALS. As one of the top types of exercises recommended for people with Parkinsons, the boxing regimen incorporates stretching, punching, core and footwork, vocal exercises, and mental sequencing. Healthcare practitioners have seen improvement in their patients Parkinsons symptoms, including:

Improves gait, balance, and flexibility

Combats loss of voice

Promotional & Privacy Disclaimer

Punch 4 Parkinsons is an organization dedicated to developing immersive, non-combat boxing training and exercise programs for individuals with Parkinsons. Through charitable donations, P4P has sponsored over 400 Parkinsons Warriors and provided them with hands-on training by partnering with carefully vetted boxing training centers sanctioned by USA Boxing, Inc. At P4P, we are dedicated to helping our Warriors slow and oftentimes reverse the progression of symptoms of the disease, allowing them to live happy and healthy lives.

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Where Does My Donation Go

Moving Day proceeds help bring quality care to more people with Parkinsons, further Parkinsons research, education and outreach initiatives. Moving Day raises awareness of Parkinsons both nationally and in the local community.

For more information about our local programs funded through your support of Moving Day, please .

Why We Call Them Warriors

Parkinson

Parkinsons sufferers, especially those in the advanced stages of the disease, fight every day to complete simple tasks that the rest of us take for granted. They combat debilitating symptoms of this terrible disease with the knowledge that their symptoms are going to get progressively worse over time. Our P4P Warriors have the willpower to get up each day and battle against these symptoms. They get to the gym and fight to regain control of their physicality and mentality. And for this, we call them Warriors.

Are you or someone you know interested in support through our boxing training program?

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The Poise Project Is Honored To Announce That We Are The Recipient Of A $25000 Grant From The Parkinson’s Foundation As Part Of The 2017 Moving Day Community Grant Program Of The North Carolina Triangle Area This Grant Will Support Our Program Partnering With Poise: Alexander Technique For Care Partners At Eight Sites Across North Carolina

“We are excited to introduce Alexander technique training directed toward the care partners of people living with Parkinson’s,” said Monika Gross, Executive Director of THE POISE PROJECT. Care partners create a tremendous positive impact on outcomes for their loved ones. We want to support them by teaching them unique skills to help manage and problem-solve the specific physical and emotional challenges Parkinson’s has brought into their lives. We are very grateful for this grant from the Parkinson’s Foundation and the opportunity to develop a completely new program to serve the North Carolina PD community.”

Partnering with Poise is a ten-week program for care partners of people living with Parkinson’s, offering a community of support for the day-to-day physical and emotional stresses of caregiving. It consists of a ten-week group class plus pre- and post-class evaluations, and includes opportunities for input and feedback from the local PD community.

Alexander technique is a well-established approach for skillfully managing stressful circumstances. AT training has also been found to be effective in reducing physical symptoms such as chronic neck and back paincommon complaints for caregivers.

For more information on 2017 Moving Day® walks, visit

To support or participate in the 5th Annual NC Triangle Moving Day® walk in Cary NC on Sunday, October 1, 2017, visit

Help Us Knock Out Parkinsons

Punch 4 Parkinsons is a charitable organization focused on developing, implementing and funding non-combat boxing programs for those suffering from Parkinsons Disease. Research has shown that high-intensity exercise like boxing slows and oftentimes reverses the progression of Parkinsons symptoms, and weve seen first-hand the remarkable physical and cognitive benefits.

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Annual cost to fund one warrior

Every 9 Minutes

Someone is diagnosed with Parkinsons Disease

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We Help Patients Caregivers & Families

Read more about Parkinson’s disease on our website, or call our toll-free Resource line at 903-7275.

Educational Events

We host regular events to share the latest news related to Parkinson’s disease and what to expect, directly from local neurologists and other experts. Learn More

Movement Therapy

Exercise is a vital component to slowing the progression of Parkinson’s disease, so we offer a few different programs to encourage movement. Learn More

Resource Library

Our resource library provides information on the latest news related to Parkinson’s disease which can be accessed online or toll free at 903-7275. Learn More

Birth Defects Genetic Diseases Research

Mary’s Pie for Parkinson’s Video – Thanks Mary!!
  • Parkinson Association of the Carolinas
  • Mission:To serve as a resource for individuals and their families affected by Parkinsons disease in the Carolinas, through education, community outreach and direct support. … To serve as a resource for individuals and their families affected by Parkinsons disease in the Carolinas, through education, community outreach and direct support. We actively seek opportunities to connect individuals with Parkinsons disease and their families to support groups, professional agencies and other community resources so that will help them maintain or improve their independence and quality of life.

    Parkinson Association of the Carolinas is a 501 organization, with an IRS ruling year of 2002, and donations are tax-deductible.

    2101 SARDIS RD NORTH 15 Charlotte NC 28227-7711

    Important note on the timeliness of ratings

    The IRS is significantly delayed in processing nonprofits’ annual tax filings . As a result, the Finance & Accountability score for Parkinson Association of the Carolinas is outdated and the overall rating may not be representative of its current operations. Please check with the charity directly for any questions you may have.

    Encompass Rating System by Charity Navigator

    Overall Score

    This charity’s score is a failing score.This overall score is calculated entirely from a single beacon score: 100% Finance & Accountability

    Finance & Accountability

    Finance & Accountability Score

    out of 100

    Higher effect on score

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    Our Impact On Parkinsons Disease

    Established in 2015, Punch 4 Parkinsons has raised over $1 million and supported over 400 Warriors in combating Parkinsons each day. We partner with carefully vetted boxing training centers sanctioned through USA Boxing, Inc. to provide hands-on training, giving those with Parkinsons a fighting chance at a longer, better quality life.

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