Monday, May 16, 2022
Monday, May 16, 2022
HomeSide EffectsHow To Donate To Parkinson's Research

How To Donate To Parkinson’s Research

Celebrate The Life Of A Loved One And All The Wonderful Things That Made Them Special By Making A Donation To Pioneering Parkinsons Research Their Memory Will Have An Impact On Breakthroughs For Generations To Come

$7K donation to Parkinson’s research

It is always difficult to lose a loved one.  By organising a collection or creating a tribute page, or even by taking part in an event, you can remember a loved one whilst also helping to fund research to find a cure for Parkinsons.

Organise a collection

If you would like to organise a collection please as we will be able to provide you with donation envelopes. Or we can help you set up a Tribute page on JustGiving in memory of your loved one.

Here are some simple ways you can send in the funds from your collection:

  • Online. Use our quick and secure online form to donate in memory.
  • If you have set up a JustGiving page, all donations will be sent directly to us so you dont need to do anything further.

Please ensure to include the name of the person that you are making a donation in memory of and your contact details so that we can acknowledge your donation.  Please note that you will not be added to any mailing lists unless you have requested otherwise.

Remember your loved one on our Tribute page

Our Tribute page is a space for you to reflect on and remember your loved ones. Share your memories of them here, and the joy they brought to peoples lives.

Other ways to give in memory

We have a range of challenge events to suit all interests and abilities. Take part in a Cure Parkinsons event and raise money in memory of your loved one.

Memorial And Tribute Gifts

A memorial gift or gift in honor is a thoughtful way to remember a loved one or dear friend, while at the same time giving hope to others.

When making an online donation, kindly give us the name of the person your gift is in memory/honor of,  as well as the name and address of a family member or close friend you wish to notify of your gift.  After you have made your contribution, an acknowledgement letter will be sent to the designated family member or friend and a tax receipt will be sent to you. Please know that we will not specify the amount of the donation in the acknowledgement to the family.

Memorial and honorary contributions to the American Parkinson Disease Association are tax-deductible to the fullest extent allowed by law.

Best Parkinson’s Disease Charities To Donate To

Compared to some other areas of charity, there are relatively few Parkinson’s Disease charities available to make donations to, so this list pretty much covers all of the most significant ones out there.

  • American Parkinson Disease Association – Supporting people with Parkinson’s Disease, and finding the cure
  • Michael J. Fox Foundation for Parkinson’s Research – Dedicated to finding a cure for Parkinson’s Disease
  • National Parkinson Foundation – Dedicated to meeting the needs of care and treatment for people with Parkinson’s Disease
  • Parkinson’s Disease Foundation – Dedicated to finding a cure for Parkinson’s Disease as well as support people who have the disease.
  • National Institute of Neurological Disorders and Stroke – supporting people with all kinds of neurological disorders, including Parkinson’s disease.

Our Vote For Best Parkinson’s Charity

For the best Parkinson’s Disease Charity, our vote goes to the Michael J. Fox Foundation. It is actually one of the most efficient Parkinson’s disease charities, received an A rating from AIP and a 66.32 overall score from charity navigator, one of the highest scores in its area of charity.

What Is The Best Parkinson’s Disease Charity? Resources

Dr Emily Swinkin Clinical Movement Disorder Fellowship Funded By Hartley Richardson Through Pedaling For Parkinson’s

Supporting Dr. Swinkin’s Fellowship at Toronto Western HospitalSwinkin is a neurologist embarking on her first year as a Clinical Movement Disorders Fellow with the University Health Network, working at the Toronto Western Hospital Movement Disorders Clinic. Her goal is to learn more about how to help people with complicated cases of Parkinsons disease and refine her skills in treating movement disorders.Swinkin will gain experience in deep brain stimulation, a treatment that involves inserting electrodes in the brain to deliver electrical pulses that can help control the motor symptoms of Parkinsons such as tremors, stiffness and slowness.Shell also learn more about Duodopa, an intestinal gel infused directly into the intestine to improve the way levodopa works, by extending the amount of time the drug can continuously relieve Parkinsons symptoms.

Together We Can Deliver New Treatments Faster

Parkinson Research Foundation Inc nonprofit in Sarasota ...

We urgently need new treatments. For Drew. And for his wife and children. And for everyone living with Parkinson’s. You can fund the most promising research today.

Because of donations from people like you, we’ve invested £100m in groundbreaking research over the past 50 years.

We’ve uncovered clues to the causes of Parkinson’s. And we’re investing in promising research to discover new treatments. We’re close. But not close enough. You can make a difference.

Will you donate now and help bring these research breakthroughs closer?

What Are The Steps Of Brain Donation

  • Decide this is the right option for you.
  • Register to become a brain donor through the Brain Donor Project.
  • Match with a brain bank in the National Institutes of Health NeuroBioBank network. Receive forms and additional information needed to finalize your registration. 
  • Talk about your decision with your family so they can ensure your wishes are carried out. Consider using the NIH NeuroBioBank brochure for reference.
  • Ensure your wishes are carried out by providing designated family members with the brain bank contact information. Your family will not incur any expense for the donation.
  • Help hundreds of researchers further their Parkinsons research.
  • Dr Ji Hyun Ko New Investigator Award Funded By Pedaling For Parkinson’s

    Validation and calibration of the PREDIGT score to predict the incidence of Parkinsons in healthy subjectsDeep brain stimulation is a treatment to reduce the tremors, stiffness and slowness associated with Parkinsons disease by placing electrodes that deliver electrical currents deep inside the brain, reactivating areas where the circuitry for motor control is damaged.Although effective in reducing these motor symptoms, deep brain stimulation requires surgery and does not improve the reasoning, judgment and memory deficits that Parkinsons can also produce.At the University of Manitoba, neuroscientist Ji Hyun Ko is exploring the use of another, less invasive form of brain stimulation to treat those cognitive symptoms. Hes focusing on the damaged circuits in an area deep within the brain called the caudate nucleus, which researchers believe is key to cognition.”Parkinsons disease is about circuits. That to me was very interesting, because I can model the problem and as an electrical engineer, if I can model the problem, I can solve the problem as well” says Dr. Ko.

    Watching Father Deteriorate Was ‘heartbreaking’

    Parkinson’s is a progressive neurological condition, recognised through symptoms like tremor, slowness of movement and rigidity.

    According to Parkinson’s Australia, it is the second most common neurological condition in the country and research estimates that more than 100,000 Australians are living with the disease.

    Mr Tully said it was tough watching his father struggle with the condition.

    “It’s heartbreaking,” he said.

    “Because they gradually deteriorate over time, you can see the frustration and how hard it is to be trapped inside, they’re a bit of a prisoner in their own body as their body lets them down.

    “It was a struggle because I could see that he was in pain and trembling and just frustrated.”

    Mr Tully said the response to his photography project from clients had been great.

    “It’s been amazing seeing that Parkinson’s disease is actually affecting a lot of people who run in similar circles to me, I was just never aware that they’d had to experience that with a loved one as well,” he said.

    “I’ve got a client who wants me to photograph her honeymoon and it turns out her grandmother was diagnosed with Parkinson’s and struggling with it and she said: ‘We want to do this session and, based on what you’re about, there’s no-one else we’d want to do it.’

    “So it’s been really humbling and really nice.”

    Donate By Mail Phone Or Online

    Bob Benjamin: We’re Matching $100,000 in Donations to Parkinson’s Disease Foundation

    PFNCA relies on donations from individuals, corporations and foundations to provide its programs and services.  Your donation is a great investment.  84 cents of every dollar spent by PFNCA is spent on program related activities.  Thank you for your consideration in giving generously to PFNCA.  Ways to give include:

    Online:

     Please to donate online.

    Parkinson Foundation of the National Capital Area3570 Olney Laytonsville Rd #490Olney, MD 20830

    For a donation form you can print at home, please

    Tribute Gifts

    If your gift is in honor or in memory of someone, please include the following with your donation:

    • Name of person the gift is in honor or in memory
    • If the gift is in honor or in memory of that person
    • The name and address of the person whom you would like to receive an acknowledgement of the gift. Please note that PFNCA does not include the donation amount when it notifies people of gifts in memory of or in honor of people.

    If you would like to make a donation over the phone using your credit card, please call the PFNCA office at 844-6510 ext. 6.

    Update: Dr Scott Ryan

    Dr. Ryan and his team at University of Guelph have recently published results in Nature Communications. Says Ryan of his findings, “Identifying the crucial role cardiolipin plays in keeping these proteins functional means cardiolipin may represent a new target for development of therapies against Parkinson’s disease,” said Ryan, a professor in U of G’s Department of Molecular and Cellular Biology. “Currently there are no treatments that stop nerve cells from dying.. The U of G researchers found that while cardiolipin in mitochondria pulls synuclein out of toxic protein deposits and refolds it into a non-toxic shape, in people with Parkinson’s disease, this process is overwhelmed over time and mitochondria are ultimately destroyed, said Ryan. “As a result, the cells slowly die. Based on this finding, we now have a better understanding of why nerve cells die in Parkinson’s disease and how we might be able to intervene.” Read more on his project and the recent publication.

    Dr Hideto Takahashi New Investigator Award Funded In Honour Of Dr John Newall

    Role of neurexin in the spreading of a-synuclein pathology in Parkinsons disease

    Dr. Takahaski’s project investigates the molecular mechanisms underlying the spread of -synuclein in Parkinsons. In particular, the spread of -synuclein to limbic and cortical regions of the brain has been highly correlated with cognitive challenges in Parkinsons. Dr. Takahashis project presumes that -synuclein spreads similar to peptides that cause Alzheimers.The project hopes to deepen our understanding of how the protein -synuclein spreads in Parkinsons which could lead to a better understanding of how to treat cognitive issues in Parkinsons disease by preventing or mitigating the spread of -synuclein.

    Donate A Vehicle To Parkinson’s Foundation

    Looking for a way to support Parkinson’s Foundation? Donate your vehicle! While and truck donations are our most popular type of vehicle donations, we also accept motorcycles, golf carts, motorhomes and more. Vehicle donations are one of the most generous ways to give to non-profits AND it doesn’t cost you anything except maybe an old car that you don’t need anymore. When you donate a car to Parkinson’s Foundation you are supporting their mission to

    Our Greatest Success Story

    Pennies for Parkinson

    Dr. Scott Ryan was awarded a Pedaling for Parkinson’s Grant in 2014, details and his breakthrough findings follow:

    Pedaling for Parkinson’s New Investigator Award: Dr. Scott Ryan. Dr. Ryan’s research will target mitochondrial defects in a human stem cell model of Parkinson’s. Read more about Dr. Ryan’s research.

    Pedaling for Parkinson’s Clinical Movement Disorders Fellowship : Dr. Camila Henriques de Aquino. Dr. Henriques de Aquino’s research will aim to improve Phase IIa clinical studies of new treatments for Parkinson’s .

    Many People With Parkinson’s Find Their Symptoms Get Worse During Coronavirus Lockdowns

    Together, we can provide vital support and fund life-changing research for people living with Parkinson’s and their loved ones.

    For Drew, a married father of two, Parkinson’s means he can’t have the career he dreamed of. Diagnosed at 34, he suffers from stiffness, rigidity and fatigue. This means he can’t do everyday tasks easily, like taking a shower or brushing his teeth. Sometimes he can’t move his hands or pick things up. 

    “It hurts to know I can’t have the career I wanted. I was setting myself up to become a luthier – someone who builds instruments and toys and furniture. I love making things and working with wood. After I was diagnosed, I became really depressed.

    It’s hard to put into words just how life-changing a new treatment would be. It would mean getting my future back. My kids getting their dad back to his full potential. And my wife getting the man she married back.”

    What Your Donation Helps Us To Do:

    Provide a platform for collaboration and networking of our member organisations.

    Raise national awareness and understanding of Parkinsons and its impacts on people affected by the condition.

    Promote the importance of research into the cause, treatment and impacts of Parkinsons.

    Lobby and advocate to the Australian Government and associated agencies

    on behalf of people affected by Parkinsons.

    There are several ways you can donate to Parkinson’s Australia listed below.  If you are making a donation in memorial to someone and would like a letter of acknowledgement to be sent to their family, please email with the details.

    Dr Naomi Visanji Pilot Project Grant Funded By Don Maclean Through Pedaling For Parkinson’s

    Dural lymphatic vasculature: a new player in the pathophysiology of Parkinsons diseaseMost organs in the body have a lymphatic system to drain toxins, waste and other unwanted materials. After long believing it did not exist, researchers have realized the brain, too, has a lymphatic system to do this cleansing work.At Toronto Western Hospital, Scientific Associate Naomi Visanji, a neuroscientist, immediately saw the implications of this discovery. Shes investigating the lymph vessels in the brain to see if they door coulddrain alpha-synuclein, a protein that accumulates in the brain cells critical to Parkinsons disease. That accumulation kills the brain cells producing dopamine, the chemical that signals other cells to initiate movement.”Because lymph vessels are involved in drainage of fluid, waste and other unwanted material, its a natural idea that the vessels might be involved in the drainage of excess toxic proteins in the brain,” says Visanji.

    Why Should I Donate My Brain To Parkinson’s Research

    Parkinson’s donation

    Due to our aging global population, each year more people are being diagnosed with neurological disorders. Breakthroughs in brain disease depend on studies using donated post-mortem human brain tissue. Since one brain can provide tissue for dozens sometimes hundreds of neurological studies, an individual brain donation is a highly valuable gift that almost anyone can make.

    Lets Talk About Brain Donation

    One of the most fundamental ways for scientists to learn about Parkinsons disease as well as other brain disorders, is by studying the brain tissue of people with these diseases. There is never too much of this extremely valuable material for research studies.  While there are major strides in developing cellular and animal models to study the disease, novel findings from these model systems need to verified and access to human brain material with PD is critical.  Lack of brain samples is a roadblock for research by the scientific community.

    I sat down with Dr. Dennis Dickson, Professor of Pathology and Laboratory Medicine, at Mayo Clinic, Jacksonville to discuss brain donation.  Dr. Dickson is the Director of the Brain Bank for Neurodegenerative Disorders and the Director of the APDA Center for Advanced Research, also at Mayo Clinic, Jacksonville. Dr. Dickson is also a long-standing and valued member of APDAs Scientific Advisory Board.  By studying brain tissue in a variety of neurologic diseases, Dr. Dickson has made fundamental discoveries regarding the abnormal accumulation of various proteins and their ability to cause neurodegenerative diseases, as well as the relationship between various genetic mutations and neurodegenerative diseases. While the idea of brain donation can sound a bit strange, or for some people is uncomfortable to think about, my hope is that if you read on youll learn more about it and understand why it is so important for PD research.

    Best Charities For Parkinson’s Disease

    The best charities for Parkinson’s Disease are the ones that.. exist. There aren’t many easily accessible out there. When you hear about them, the ones we list below are primarily the ones you hear about. We have discovered a few others but could not validate the quality of their organizations. For instance, YOPA is geared towards educating the public and politians on young onset Parkinson’s disease, but they are not listed in the AIP ratings.

    How Many Brains Do You Receive At The Brain Bank In A Year

    The brain bank in Jacksonville receives about 200 brains each year, from all 50 states including Alaska and Hawaii, as well as from Canada. More than half are from people with parkinsonian disorders, such as PD, PD with dementia, dementia with Lewy bodies , multiple system atrophy , PSP and corticobasal degeneration.  Given that the brain bank takes in and distributes tissue, it is important for there to be a consistent stream of donated brains, and we encourage people to consider this meaningful gift.

    Data Sources: Irs Forms 990

    The lixisenatide trial

    The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. .

      Impact & Results

    This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.

    Impact & Results Score

    What Steps Can A Person Take To Arrange For Their Brain To Be Donated For Parkinsons Research

    It is important to note that for research purposes, arrangements for brain donation need to be made before death, so that the time from death to removal of the brain is as short as possible. As soon as death occurs, there are changes that occur in the brain tissue that make it much less valuable for research. If family members decide after death that they would like to have their loved ones brain donated, all the steps that need to take place prior to removal of the brain including the proper consent forms, the correct transportation arrangements for the body, access to a pathologist to remove the brain typically cant be arranged in time to make the brain donation a reality.

    It is vital to communicate with your loved ones about your decision to donate your brain and the logistics that you have pre-arranged so that they can help make the donation a reality.

    Caring For The Mind Body And Spirit

    The Muhammad Ali Parkinson Center is the most comprehensive center of its kind in the nation. Barrow neurologists and neurosurgeons are world leaders in deep brain stimulation surgery and treatment for managing the symptoms of movement disorders. In addition to surgical treatment, patients are offered a wide range of recreational therapies, such as group exercise classes and art workshops, and educational classes and support groups that benefit the mind, body and spirit.

    Thanks to a generous donation from The Bob & Renee Parsons Foundation, the Muhammad Ali Parkinson Center is taking its innovative care into the homes of housebound patient utilizing telemedicine through the Lonnie and Muhammad Ali Legacy Care Program. The program brings the same high quality care that Muhammad Ali received to patients throughout Arizona.

    Dr Sarah Lidstone Clinical Movement Disorder Fellowship Funded In Honour Of Dr Peter George Morse

    This project will support the Clinical Movement Disorder Fellowship and training of Sarah Lidstone at University Health Network in Toronto. The intent of these grants is to train the next generation of clinical practitioners thereby ensuring that more Canadians living with Parkinson’s have access to specially trained neurologists to support the management of their disease.

    Where Do The Fundraising Dollars Go

    Parkinson’s study at Toronto Institute hopes to help patients communicate

    You can learn more about the Parkinson Canada Research Program and other funded projects on Parkinson.ca.

    Quote from Debbie Davis, Past Managing Director Ontario and Vice President, Mission:

    Parkinson Canada is the only organization that specifically funds Parkinsons research in Canada. The Parkinson Canada Research Program invests in Canadian research from the ground up – starting with the discovery stage – funding only those projects that meet a standard of excellence and that are relevant to Parkinsons. Our approach to funding means that rather than awarding a limited number of large projects, we fund a larger number of smaller grants to researchers working on a wide variety of projects. The result is more researchers exploring novel ideas, providing a crucial foundation for advancing knowledge, improving treatments, developing potential therapies, and ultimately finding a cure. Funds raised through the Pedaling for Parkinsons event will fund, in their entirety, two of these research projects, as part of six projects funded throughout its lifetime, in Ontario that have met the standard of excellence applied by the Scientific Advisory Board

    Parkinsons Nsw Provides A Range Of Valuable Resources Services And Programs To The Entire Parkinsons Community

    Did you know that over 63,000 people in NSW are living with Parkinsons disease?  Thats 1 in 120 people who face an uncertain future as there is no known cure for the disease.  There are many more people affected by the disease though who care about those living with the disease.  Carers, husbands, wives, children, siblings, grandchildren.

    We are here for you and those who care for and about you. Parkinsons NSW provides essential services to everyone affected by Parkinsons, counselling, a large and growing Support Group network, a toll-free InfoLine staffed by registered Parkinsons nurses, Parkinsons Nurses in the community all free of charge and made possible by generous donors like you.

    With less than 10% of our funding coming from the government, we really on donations to ensure we can continue providing support and services to all affected by Parkinsons.  Parkinsons NSW is a Registered Charity

    Donations of any size are most welcome and our ability to provide services and to underwrite research has been underpinned by generous donations from members, carers, their friends, charitable foundations and philanthropists generally.

    Dr Penny Macdonald Pilot Project Grant Funded In Honour Of Dr Robert Lorne Alexander

    Update: Dr. MacDonald has successfully tested her hypothesis with support from this grant, and reports having leveraged the results of this grant to receive $493,426 from CIHR to continue this study.Dr. MacDonalds project is using MRI to study the brains of people who are diagnosed with Parkinsons and also affected by REM sleep behaviour disorder. The intention of this project is to determine whether the presence of REM sleep behaviour disorder can serve as a preclinical marker of onset of Parkinsons to support diagnosis. Successful treatment of Parkinsons is impacted by the fact that by the time Parkinsons is diagnosed, patients have already suffered degeneration in a significant portion of dopamine-producing neurons.A significant percentage of patients with RBD later develop Parkinsons disease or a similar illness, with RBD symptoms preceding the onset of Parkinsons by a number of years. Identifying certain changes in the brains of people with both recently diagnosed Parkinsons and RBD using MRI may point to diagnostic biomarkers for Parkinsons which may allow for early detection and intervention, ultimately leading to better treatment and management of Parkinsons.

    What Happens After Death If A Brain Donation Has Been Arranged

    If you have registered with a brain bank during life your family members will be given a 24-hour phone number to call upon death to initiate the brain donation process. Transportation will be arranged and a pathologist will be contacted. Then the family will receive the body back to continue with funeral arrangements.

    Tips and Takeaways

    • Brain donation is one of the most valuable gifts you can give to medical research.
    • PD and other brain disorders can only truly and definitively be diagnosed after death, upon examination of the brain.
    • Brain donation needs to be arranged during life to be most valuable for research.
    • You can contact the Mayo Clinic brain bank, brainsupportnetwork.org or braindonorproject.org to make arrangements for brain donation during life.
    • Talk with your family about your wishes so that they can help make the donation a reality.

    Do you have a question or issue that you would like Dr. Gilbert to explore? Suggest a Topic

    Dr. Rebecca Gilbert

    APDA Vice President and Chief Scientific Officer

    RELATED ARTICLES

    Popular Articles