Friday, March 1, 2024
Friday, March 1, 2024
HomeTrendingFinancial Help For Those With Parkinson's Disease

Financial Help For Those With Parkinson’s Disease

How Does Rytary Work

Understanding Parkinson’s disease

It appears that Parkinsons disease is caused by insufficient production of dopamine in the brain. DOPA, an enzyme found in nerve tissue, is a precursor to dopamine. The levodopa and carbidopa that are combined in Rytary work through two different mechanisms:

  • Levodopa is converted into dopamine in the brain through a process that activates the DOPA enzyme.
  • Carbidopa inhibits DOPA to offset the negative side effects caused by the conversion of levodopa into dopamine. It also increases the quantity of levodopa available to cross the blood-brain barrier and enter the brain.

Under Medicaid, some family members can be paid as caregivers.

Nursing Home CareHome and Community Based ServicesPCA / PCS Programs

How Long Does It Take To Get Disability For Parkinsons

Unfortunately, there is no clear answer on how long it will take you get to get disability benefits for Parkinsons.

After your initial SSDI application is complete, it will take the SSA around 3-5 months to get back to you with a decision regarding your claim.

The exact time varies depending on the time it takes for you to get all of your medical records and information over to the SSA to make a decision.

If the SSA denies your application, you are able to appeal the decision, but that will prolong the time it takes for you get disability for Parkinsons.

The more medical evidence and documentation you have to support your claim with Parkinsons, the shorter time it could take for you to get the benefits you deserve.

How To Get Prescription Assistance

Parkinsons disease can have a devastating effect on ones quality of life, but Rytary can help. Simplefill can ensure that youre never in a position in which you are unable to refill your prescription because you cant afford it.

To start getting prescription assistance, call Simplefill at 1386-0206 or apply online. Within 24 hours, youll be called by one of our patient advocates for a telephone profiling interview. Well use the information you provide to match you with the best Rytary assistance programs for your situation.

Well submit an application to each program we match you with, and if your application is approved, well handle the enrollment process for you. In just a short time, you could be paying much less for your Rytary.

Moving ahead, well continue to work on your behalf. Well make sure your Rytary prescription is always current, and well get you help paying for any additional medications that may be prescribed for you.

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Rytary Patient Assistance Programs

Simplefill helps those who are suffering from conditions such as Parkinsons disease pay for important medications like Rytary. Medications used to manage chronic diseases are an ongoing financial burden, but there is help available. Learn more about Rytary patient assistance programs, and enroll with Simplefill today!

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How Can I Access Benefits And Allowances


The welfare benefits system can be complex and finding out what financial help is available is not always easy. But it’s important to find out what you’re entitled to, and to claim it.

Remember, not all benefits are means tested or taxed.

See the Turn2us Benefits Calculator and Grants Search for information about sources of grant funding.

Charitable funds and trusts offer grants and can support daily costs for individuals in need. Some provide regular help, advice and practical support. Your local Citizens Advice may hold a record of these.

Occupational charities, for those who work or have worked in particular industries, and those for ex-service people can also be helpful.

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Quick Start Program Terms And Conditions

The NOURIANZ Quick Start Program sponsored by Kyowa Kirin provides patients newly prescribed NOURIANZ with a free 28-day supply of NOURIANZ to allow new patients to begin their drug therapy while awaiting a benefit investigation by Kyowa Kirin Cares to determine whether there is coverage by their health plans.

Patients must meet all of the following eligibility criteria to be considered for the Program:

The NOURIANZ Quick Start Program is NOT insurance it is a free goods program, providing a free 28-day supply of NOURIANZ to patients newly prescribed NOURIANZ.

A complete enrollment form signed by both the applicant and prescriber, which contains a valid prescription, is required. On the enrollment form your prescriber must certify that the requested product is prescribed for the FDA-approved indication.

If you have any questions regarding the Program, please contact us at 833-KK-Cares.

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Surgery And Deep Brain Stimulation

Deep brain stimulation is a treatment for Parkinsonâs disease that uses an implantable pacemaker-like device to deliver electrical pulses to parts of the brain involved in movement. The DBS system consists of leads precisely inserted into a specific brain target, the neurostimulator implanted in the chest, and extension wires that connect the leads to the neurostimulator. Though implantation of the system requires a neurosurgical procedure, the treatment itself consists of long-term electrical stimulation. Advantages of DBS include its ability to reduce the high doses of medications , its adjustability , and its reversibility DBS was approved by the Food and Drug Administration as a treatment for PD in 2002 and according to Medtronic , more than 80,000 patients have undergone DBS surgery worldwide.

Typical candidates are those who have motor fluctuations or periods of âoffâ time with troublesome symptoms alternating with periods of âonâ time with good symptom control, and also with possible periods of excessive movement .

Not all patients with Parkinsonâs disease are good candidates for treatment with DBS. Approximately 10â20% of patients considered for possible treatment with DBS include those:

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Develop A Financial Plan

Dealing with a chronic illness is unpredictable, there is no way to know how you will feel or what you will be able to do days, months, or years from now. But, for your own security and that of your family, you need to plan ahead, and assume that Parkinson’s will lead to increasing disability. There are professional financial managers and medical lawyers that deal with financial planning for people with chronic illnesses. Ask your doctor for a referral, or speak with a national association or support group to find a reputable professional in this area.

Are Disability Benefits Used For Other Forms Of Transport Or Travel Support And If So What Are The Benefits Of This

Parkinson’s Disease Exercises: Brain and Body

14. People with Parkinsons find Blue Badges very useful in enabling them to continue to be active, as it enables them to park closer to their destination.

15. Free bus passes are valued by people with Parkinsons, however there is not equal access to them across the whole of the UK. People over 60 in Scotland, Northern Ireland, Wales and London can access them, however in England you must be over pension age, currently 65. Also, another anomaly is that in England you can only use the pass between 9.30am 4pm. This places severe restrictions on people with Parkinsons attempting to find or remain in work, as they are not able to travel during peak times, which is often a key requirement of employees. We would recommend that the SSAC urges the government to:

  • make free bus passes available to everyone living in the UK at 60 years old
  • extend the time the bus pass is able to be used each day in England.

16. We know that people with Parkinsons also use disabled rail passes, which cost £20 per year. As outlined in paragraphs 5 and 6 of this submission there are barriers to using train travel, but we know people with the condition value these passes as they enable them to make longer journeys and maintain their independence.

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Patients May Be Eligible For The Kynmobi Copay Savings Card

Eligible commercially insured patients may pay as little as$15 per 30-count carton with the KYNMOBI Copay Savings Card

Eligible uninsured cash-paying patients may pay as little as$195 per 30-count carton with the KYNMOBI Copay Savings Card

No annual cap. Up to 5 cartons per month.

Eligibility requirements and restrictions apply. Individual copay amounts may vary. A maximum benefit limit also applies. For details, see the KYNMOBI Savings Program Terms and Conditions below.

Rapid Skin Swab Test May Help Diagnose Parkinsons

This provides a window of opportunity for identifying at-risk patients. If treatment is initiated during this prodromal phase, progression to full-blown Parkinsons might be slowed or prevented.

Smell impairments, or hyposmia, are a common prodromal sign of Parkinsons, with studies showing they may precede clinical diagnosis and motor symptoms by at least four years. This is consistent with the observation of lesions in areas of the brain involved in smell early in the disease.

Olfactory testing is relatively low cost and easy to administer, and so has been proposed by many groups as a useful and scalable screening test for prodromal PD , the researchers wrote.

However, smell can be affected by many other conditions, meaning that such testing is not very specific. But when its associated with other causes, such as a respiratory virus, smell loss usually is temporary, while smell loss caused by a neurodegenerative disease would be expected to be long-lasting.

Therefore, repeated smell testing over time may be a simple and effective way to increase specificity of olfactory testing with minimal effect on sensitivity, the researchers wrote. A tests sensitivity corresponds to its true-positive rate.

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Medicare Coverage Of Skilled Nursing Care Facilities

In order to receive care in a nursing home under Medicare:

  • You must have had a three-day hospital stay prior to admission into the skilled nursing facility.
  • You must be admitted into the skilled nursing facility within 30 days of discharge from the hospital.
  • You must enter the skilled nursing facility for treatment of the same condition that you were hospitalized for.
  • You must require daily skilled care.
  • The condition must be one that can be improved.
  • The facility must be Medicare-certified.
  • Your doctor must write a care plan. The care plan must be carried out by the skilled nursing facility.

Groups For Care Partners

Eating Tips for Those With Parkinsons

Care partners may also benefit from joining support groups. The Parkinsons Foundation notes that it is important for care partners to remember to care for themselves as well as their loved ones.

Care partner support groups can offer emotional support and practical advice for those caring for someone with Parkinsons disease. A person can ask a doctor about local support groups or search for them online.

Organizations and websites that offer support for care partners include:

  • The APDA: The APDA provides resources and support for care partners as well as people with Parkinsons disease.
  • The Parkinsons Foundation: This organization also provides information for caregivers.
  • The Family Caregiver Alliance: This organization provides services for caregivers and the people who receive their care. FCA CareNav is an online resource for family caregivers.

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More Information About Applying For Patient Financial Assistance

Who qualifies for financial assistance?

To qualify for a financial assistance program, you must:

  • Be getting treatment for the disease named in the assistance program, and
  • Be taking a medication thats covered by your health insurance and listed in the assistance program, and
  • Have an income thats at or below the Federal Poverty Level listed by the assistance program, and
  • Live and receive treatment in the United States or U.S. territories. You dont have to be a U.S. citizen.

What information do I need to apply as a patient?

Youll need to provide your:

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Seek The Counsel Of A Social Security Attorney When Applying For Disability With Parkinson’s Disease

If you or a member of your family has been diagnosed with Parkinsons Disease, the symptoms which prompted the diagnosis may also serve as the qualifications for Social Security Disability benefits.

With the amount of documentation necessary to prove the presence of these qualifying criteria, it would likely be in your best interests to have your case evaluated by a Social Security Disability attorney who may be able to help with your claim.

While the degree of impairment caused by these symptoms may seem obvious to you, having them sufficiently documented so their impact is adequately illustrated on paper is imperative to receiving a positive decision from the Social Security Administration.

Working in close collaboration with your healthcare providers, a Social Security Disability attorney or disability advocate can be sure the proper documents are provided when your application is submitted so your benefits can begin as soon as possible.

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If You Or A Loved One Are Living With Parkinsons You Are Well Aware Of The Financial Burden The Disease Brings

Over and above the medical costs, the average annual indirect and non-medical costs for a person diagnosed with Parkinsonâs disease is over $19K â over $25K when combined with caregiver burden.

You may find you have to make some difficult decisions about which necessary services you are able to access.

We at Rise Above Parkinsons know how you feel. Our loved one has been on his Parkinsonâs journey for over a decade now, and during that time, weâve financed home renovations, adaptive gear, therapeutic services, and more. Weâve found these supportive services to be critical to his well-being and quality of life. And we want that for your loved one too.

Rise Above Parkinsons is a place where you can feel cared for, and where you can receive financial support, trust, and the attention you need. Our goal is to help your loved one live the best life possible. Because weâre all in this together.

Because you are so much more than your diagnosis.

We want to help you rise.

Getting Aid is as Easy as 1-2-3

Fill out a free, confidential application here.

Work directly with one of our Client Advocates to create your personal support plan.

Aid is then delivered directly to your service provider.

Getting Aid is as Easy as 1-2-3

  • Fill out a free, confidential application here.

  • Work directly with one of our Client Advocates to create your personal support plan.

  • Aid is then delivered directly to your service provider.

  • Additional Information

    Additional Terms And Conditions:

    Parkinson’s Disease: Financial, Legal & Medical Planning Tips for Care Partners
    • A maximum benefit limit may also apply patients should confirm their out-of-pocket cost with their specialty pharmacy.
    • To enroll in the NORTHERA Commercial Copay Assistance Program, , or call if you have questions.

    This information is provided for informational purposes only. This information is subject to change, and Lundbeck makes no guarantees with regard to commercial plan coverage. Not all commercial coverage is the same, and nuances in your plan design may impact coverage for NORTHERA. If you have commercial insurance, contact your insurer for specific details regarding your coverage.

    NORTHERA stands by you every step of the way, so you can feel confident you will have access to the medication you need. With financial support offerings available to you, including the copay assistance program, you can keep moving forward with NORTHERA.

    Please see Important Safety Information, including Boxed Warning for supine hypertension.

    For more information, see the full Prescribing Information.

    NORTHERA is a prescription medication used to reduce dizziness, lightheadedness, or the feeling that you are about to black out in adults who experience a significant drop in blood pressure when changing positions or standing ) and who have one of the following:

    Effectiveness beyond 2 weeks of treatment has not been established, and your doctor will decide if you should continue taking NORTHERA.


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    Does The Parkinsons Foundation Offer Financial Help

    While the Foundation does not give financial aid, information specialists can refer you to organizations that may be able to help with financial assistance for medication, transportation, basic needs and respite or nursing home care. Our specialists can also give information about various government social service programs that you may qualify for.

    How Does Participation/non

    19. Participation in the Motability scheme gives an individual with Parkinsons much more independence and flexibility over their lives, especially if they live in a rural area where public transport is limited. However, it is an expensive scheme so participation must be weighed up alongside other household costs.

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    Medicaid / Hcbs Waivers

    Under Medicaid, some family members can be paid as caregivers.

    Nursing Home CareHome and Community Based ServicesPCA / PCS Programs

    PCA stands for Personal Care Assistance or Personal Care Attendant and PCS for Personal Care Services. These are regular Medicaid programs that will pay a caregiver to come to ones home and provide personal care such as assistance with the activities of daily living An especially attractive element of these programs is the fact that often times, the paid caregiver can be someone familiar to the individual with Parkinsons. Friends and certain family members can be hired as paid caregivers. The downside of PCA / PCS programs are that the hourly wage that caregivers receive is very low and this is an optional Medicaid benefit. This means not every state offers this option as part of their regular Medicaid programs. A list of states which do offer PCS can be found here. Be aware that this list is not exhaustive and if one does not see their state listed, they should also inquire with their state Medicaid office if such a program is available in their state.

    Can My Employer Terminate My Employment


    Your employer technically cannot terminate your employment because of your disease. You are protected by the Charter of Human Rights and Freedoms since it includes Parkinsons disease as a disability.

    Nevertheless, there are situations where your employer may justify terminating your employment despite the fact that you have a disability. For example, if:

    • The proper functioning of the business is excessively hindered due to the characteristics of your disability
    • Your employer has tried to find appropriate accommodations with you, but you are still unable to perform your work in the reasonably foreseeable future
    • You have an excessive absence rate with no possibility of improvement in the reasonably foreseeable future
    • You do not work with your employer to agree on reasonable accommodations

    Employee discrimination based on a disability means treating an employee differently from others because of their disability or how they deal with it. It can also include not taking their personal characteristics into account at work.

    Discrimination can take many forms and is not always obvious. Employee discrimination based on disability is prohibited by law before hiring, during employment, and upon termination of employment, if applicable. If you believe you are being discriminated against, you may file a complaint with the Commission des droits de la personne of Quebec .

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