Monday, March 27, 2023
Monday, March 27, 2023
HomeNewsParkinson Research Foundation Charity Rating

Parkinson Research Foundation Charity Rating

Shriners Hospitals For Children

Parkinson√Ęs Foundation Earns 4-Star Rating from Charity Navigator

Shriners Hospitals for Children can be found throughout the United States, Mexico and Canada. Their goal is to provide the best healthcare possible to every child suffering from special healthcare needs. Shriners also invests heavily in research related to these pediatric healthcare needs and helps fund medical care and related costs for families in need. About 84% of revenue is used on programming.

Prevent Child Abuse America

Through chapters around the U.S. Prevent Child Abuse America hopes to help prevent the neglect and abuse of children in America. They provide prevention education on topics from shaken baby syndrome to sexual abuse and have a home visit program. The group reaches about 100,000 families each year using 94% of funds for programming.

Boys And Girls Clubs Of America

Boys and Girls Clubs of America is a well-known organization that branches out nationally to support and enable America’s youth to reach their full potential. They do this through local chapters of clubs that offer a variety of programs including after school tutoring, classes or anything else that suits the local community. Through this charity, there are more than 4,600 clubs that have served more than four million youth and 81% of funds go to programming.

Don’t Miss: Is Cbd Oil Good For Parkinson’s

Hope Charities: Supporting Patients With Bleeding Disorders

Hope Charities was founded in 2009 by a group of friends to help patients suffering from Hemophilia. Since their founding, the organization has grown into a national network, financially and emotionally assisting patients that suffer from Hemophilia and other bleeding disorders.

Their impact and transparency ratings: Hope Charities holds the Silver Seal of Transparency from GuideStar.

You are not alone.

Hope Charities

What they do: Hope Charities helps patients and families affected by bleeding disorders. They do this by providing resources, such as transitional living, dental programs, and co-pay aid. For example, their Direct Patient Assistance programs offer financial support to affected people, and their Access To Care programs cover insurance premiums on behalf of patients.

What theyve achieved: Since their founding, Hope Charities have served over 3,000 requests for assistance, including $1.2 million in financial aid, to support affected patients and their families. For example, they have provided medical benefits to over 1,200 patients, housing to over 900 individuals, and utilities and transportation to over 300 individuals.

Ways to contribute: You can support Hope Charities by donating directly on their website. You can also become a volunteer and support them through their online events.

Financial And Annual Reports

Michael J. Fox Foundation Grants $7.7M for New Parkinsons Research ...

The Parkinson’s Foundation has been rated a four-star charity by Charity Navigator for exceeding industry standards with our exceptional performance and accountability. The Foundation has also been designated as an Accredited Charity by the Better Business Bureau Wise Giving Alliance , meeting all 20 BBB Charity Standards.

Read our financial highlights and other accomplishments from the last fiscal year below.

*Reports reflect the Parkinson’s Foundation 2021-22 fiscal year

Read Also: How Does Parkinson Disease Affect Your Memory

Whats So Great About Our Course

It ensures all professionals have access to training informed by the experiences of people affected by Parkinsons.

Endorsed by the Royal College of Nursing, Understanding Parkinsons for health and social care staff is an online course that helps health and social care professionals understand Parkinsons better, influencing changes in practice by encouraging reflection.

  • It is free, easy to access and simple to use.
  • As an open educational resource, it can be reused, revised and shared by anyone.
  • Its sustainable and cost effective, ensuring the best use of charity money.
  • It ensures all professionals have access to training informed by the experiences of people affected by Parkinsons.

90% of course graduates who took our survey told us they plan to improve their practice and influence change in their organisations. This in turn will improve the lives of the 127,000* people in the UK with Parkinsons.

We would like to thank everyone who has taken this course and made changes to their practice and that of their organisations as a result.

Wed also like to thank the Opening Educational Practices in Scotland project and the J Macdonald Menzies Trust for funding the course.

Parkinsons UK is thrilled that the judges have recognised our trailblazing Understanding Parkinsons course.

Katherine Crawford, Scotland Director at Parkinsons UK, says:

Parkinsons UK is thrilled that the judges have recognised our trailblazing Understanding Parkinsons course.

What We Aim To Solve

The mission of the Parkinson Research Foundation is to help find a cure for Parkinsons disease through funding research while providing ongoing education and free services that enhance the quality of life for Parkinson patients, caregivers, families, & the community supporting more than 1 million people throughout the U.S.

Read Also: Parkinson’s And Diabetes Medication

American Kidney Fund: Fighting Kidney Diseases At All Fronts

The American Kidney Fund was founded in 1971 in the US by a group of friends to raise funds for kidney dialysis treatments. Today, they are the only organization that takes a comprehensive approach to fight kidney diseases.

Their impact and transparency ratings: The American Kidney Fund holds a four-star rating from Charity Navigator as well as a Platinum Seal of Transparency from GuideStar.

Join us to fight kidney disease on all fronts

American Kidney Fund

What they do: The American Kidney Fund fights the burdens of kidney diseases through research, treatment, legislation, and awareness. Theyve been driving kidney research since 1988 with their Clinical Scientist in Nephrology program. And their members work with Congress, and state governments to support policies essential for kidney patients.

What theyve achieved: Since their founding, the American Kidney Fund have helped patients with kidney disease from prevention to life-saving treatments to post-transplant living. For example, in 2021 alone, their support enabled 157 kidney transplants per month, they helped more than 80,000 dialysis and recent transplant patients to cover healthcare-related expenses, and they also provided more than $450,000 in disaster grants to more than 2,400 kidney patients affected by natural disasters. In addition, their research team of 51 scientists advances neurological research related to kidney diseases.

Big Brothers Big Sisters Of America

Neuro Talk: Top PD GENEration FAQ with Jim Beck, PhD Parkinson’s Foundation Chief Scientific Officer

Big Brothers Big Sisters is the largest donor and volunteer based mentoring group in the U.S. Kids ages five and up are matched with a mentor who helps the kids learn about positive relationships and reach their individual potential. The group allocates about 90% of its funds to program implementation.

You May Like: What Is The Difference Between Parkinson’s And Huntington’s Disease

American Civil Liberties Union

The ACLU describes itself as the “defender of the U.S. Constitution” who seeks to uphold the Bill of Rights for all people in the United States. Volunteers and attorneys help fight for individual freedoms around the country. They use about 84% of funds on programming and services to help defend individuals or specific groups in need.

To Support The Diagnosis Your Healthcare Provider Will Also Look For Other Symptoms:

  • Reduced facial expression
  • on one side of the body while walking

Symptoms such as shoulder pain, depression, sleep problems, constipation and loss of sense of smell can begin long before any of the motor symptoms appear. Because symptoms like these can be subtle at first, they are not always evident or meaningful before diagnosis. It is common after being diagnosed with Parkinsons to look back and realize symptoms had been coming on gradually for months or even years. Often people explore other treatment avenues for early symptoms, like physical therapy or even surgery for pain, only to discover later it was actually connected to Parkinsons.

Since doctors diagnose other medical conditions using sophisticated technology, many are surprised to learn a Parkinsons diagnosis is based on your medical history and a simple examination. While your healthcare provider may take other steps, such as order blood and urine tests, check copper levels and order a brain scan, such as an MRI or CT or DaTscan that measures dopamine, these tests do not diagnose Parkinsons. They are used to either confirm the diagnosis or determine if another medical condition is causing your symptoms.

Everyones experience of Parkinsons will be unique, and a person with YOPD may have similar symptoms as someone diagnosed later in life.

Recommended Reading: What Is The Progression Of Parkinson’s

American Chronic Pain Association: Information And Guidance For Pain Management

The American Chronic Pain Association was founded in 1980 in the US by Penney Cowan to help people suffering from chronic pain. Today, the organization has grown into several hundred support groups that coordinate and help affected patients across the US, Canada, Great Britain, and many other countries.

Their impact and transparency ratings: The American Chronic Pain Association holds a Give With Confidence score of 95 from Charity Navigator.

To live well in spite of a chronic pain problem, you need to be a well-informed consumer.

American Chronic Pain Association

What they do: The American Chronic Pain Association offers peer support and education in pain management skills to people with pain, their family and friends, and employees from the healthcare industry. As part of their holistic education program, they host informational content on pain management for a number of diseases and several video libraries such as the Implantable Medical Devices series and Pathway Through Pain series.

What theyve achieved: Since their founding, the American Chronic Pain Association has helped countless people to better live with and manage their chronic pain. One key achievement is the publication of their Resource Guide to Chronic Pain Management, a multi-year collaboration with Stanford Medicine and more than 100 contributors, which provides detailed information on medical, interventional, behavioral, pharmacological, and rehabilitation therapies.

Mindy Flinn Mba Vice President Of Development

Click through to learn more about Parkinson

Mindy Flinn joined the MMRF in May 2020 as the Vice President of Development where she works with a talented team raising philanthropic support for the organization. She brings over 23 years of development experience to this position. Ms. Flinn spent over a decade in development at Mayo Clinic in Rochester, MN and in Jacksonville, FL, where she oversaw the stewardship of top-level benefactors and served as a major gift officer. She also worked for the LIVESTRONG Foundation in Austin, TX as a major gift officer and was Director of Philanthropic Resources at MD Anderson Cancer Center in Houston, TX. Prior to joining the MMRF, she was Senior Director of Development at Yale School of Medicine. Ms. Flinn received her Bachelor of Science in Biology from Bethel University and a Master of Business Administration from Cardinal Stritch University. Her additional accomplishments include successfully climbing Mt. Kilimanjaro in 2012 as a member of Survivor Summit and skydiving.

Don’t Miss: Novo Nordisk Parkinson’s Disease

Huntingtons Disease Society Of America Receives 4

For Immediate ReleaseContact: Christopher Cosentino, Director of Marketing & CommunicationsPhone: 242-1968 x229Email:

New York, NY On December 1st, the Huntingtons Disease Society of America received a 4-star rating from Charity Navigator. Charity Navigator is recognized as Americas top evaluator of nonprofit organizations.

On behalf of Charity Navigator, I wish to congratulate Huntingtons Disease Society of America on achieving our coveted 4-star rating for sound fiscal management and commitment to accountability and transparency, said Michael Thatcher, Charity Navigators President and CEO. Receiving four out of a possible four stars indicates that HDSA adheres to good governance and other best practices that minimize the chance of unethical activities and consistently executes its mission in a fiscally responsible way. Approximately a quarter of the charities we evaluate have received our highest rating, indicating that Huntingtons Disease Society of America outperforms most other charities in America.

Were honored to receive this rating as confirmation of the high ethics that we hold ourselves to in our faithful execution of our mission to improve the lives of everyone affected by HD and their families, said Louise Vetter, HDSAs CEO. This recognition would not be possible without the commitment to excellence exhibited by all of the volunteers throughout HDSA. Their dedication is what really sets us apart.

Also Check: What Is The Symptoms Of Parkinsons In Early Stages

Healthwell Foundation: Financial Aid For The Underinsured

The HealthWell Foundation was founded in 2003 in the US to help underinsured Americans with funding for critical medical treatments. Today, the foundation supports adults and children, including many with chronic illnesses, by covering financial gaps in their insurance policies.

Their impact and transparency ratings: The HealthWell Foundation holds a perfect score of 100 from Charity Navigator and a Platinum Seal of Transparency from GuideStar.

When health insurance is not enough

HealthWell Foundation

What they do: The HealthWell Foundation seeks to of underinsured patients suffering from chronic or life-threatening conditions. They offer funds for drug coinsurance, copayments, deductibles, health insurance premiums, and other selected out-of-pocket health care expenses. In addition, they have partnerships with many health care organizations and societies to support patients.

What theyve achieved: To date, the HealthWell Foundation has aided more than 727,000 patients with funds for medications totaling over $2.7 billion in co-payments. For example, in 2021 alone, they awarded over $818 million in grants. And in the same year, they actively manage over 185,400 grants and assisted over 37,000 monthly callers.

Ways to contribute: You can donate to the HealthWell Foundation directly through their website. You can also stay up-to-date with new developments and contact the charity through their social media pages.

You May Like: Why Is Parkinson’s Increasing

Interdisciplinary Team Of Experts

The Parkinsons Foundation Center of Excellence at UNC offers patients and their families comprehensive, specialized care for Parkinsons disease. Our interdisciplinary team of experts is trained to address the physical, cognitive, and emotional needs of those coming to our clinic. We actively work with patients and their families to develop individualized treatment plans and recommendations.

Our team includes specialists from the following areas:

  • Neurology/Movement Disorders

Concerns Of Police Survivors

What is Parkinson’s Disease?

After a police officer loses their life in the line of duty, Concerns of Police Survivors, or C.O.P.S., helps their co-workers, friends and family members cope with the loss. The group provides free resources to any survivors in need through its fifty American chapters using 90% of funds for services. Programs include summer camps and counseling reimbursement for kids and an annual conference for adults.

Don’t Miss: Clinical Manifestations Of Parkinson’s Disease

Cure One Cure Many Award

The American Brain Foundations Cure One, Cure Many Award supports breakthrough research in brain disease. The award provides large-scale, catalyst funding to the worlds top researchers who are pursuing the most innovative, cross-cutting approaches to finding diagnoses, treatments, and cures for brain disease. The award targets research topics that cut across multiple disease areas.

NEXT-GENERATION RESEARCHERS

Recommended Reading: Involuntary Humming Parkinsons Disease

Race Ethnicity Religion And Languages

Miami has a population, as comprise less than half of the population, 11.9%, down from 41.7% in 1970. make up 70% of Miamis population. As of the 2010 census, the racial makeup of the population of Miami was 72.6% , 19.2% Black or , 1% , and the remainder belonged to other groups or was of mixed ancestry.

The 2010 US Census reported that the population in Miami accounted for 70% of its total population, with 34.4% of city residents being of origin, 15.8% had a background , 8.7% were of descent , 4.0% had origins , 3.2% descended from , 2.4% were , and 1.5% had ancestry.

As of 2010, those of African ancestry accounted for 19.2% of Miamis population. Of the citys total population, 5.6% were or origin , 3.0% were , and 0.4% were origin.

As of 2010, those of European ancestry accounted for 11.9% of Miamis population. Of the citys total population, 1.7% were German, 1.6% Italian, 1.4% Irish, 1.0% English, 0.8% French, 0.6% Russian, and 0.5% were Polish. Since the 1960s, there has been massive with many non-Hispanic whites moving outside Miami due to the influx of immigrants settling in most parts of Miami.

As of 2010, those of Asian ancestry accounted for 1.0% of Miamis population. Of the citys total population, 0.3% were / , 0.3% / , 0.2% , 0.1% were other Asian , 0.1% , 0.1% , and 0.0% were .

In 2010, 1.9% of the population considered themselves to be of only American ancestry , while 0.5% were of Arab ancestry, as of 2010.

Don’t Miss: Does Sugar Affect Parkinson’s

Parkinsons Foundation Earns 4

NEW YORK & MIAMI The Parkinsons Foundation has achieved a 4-star rating from Charity Navigator, the nation’s largest and most-utilized evaluator of charities.

The 4-star rating is the highest rating given only to nonprofit organizations that exceed industry standards and outperform peers, while demonstrating strong financial health and commitment to accountability and transparency.

This rating is an indication that we are efficiently working towards our mission to help the nearly one million people with Parkinsons in the U.S. live better lives, said John Lehr, Parkinsons Foundation president and chief executive officer. We take our commitment to donors seriously and are proud to highlight this badge of transparency and accountability from Charity Navigator.

The prestigious four-star rating signifies that donations to the Parkinsons Foundation will continue to be invested in support of the Foundations mission. Eighty-five cents of every dollar the Foundation spends goes to people affected by Parkinsons through funding groundbreaking research, life-changing programs and community outreach efforts.

Our 4-star rating demonstrates to our donors and supporters that they can trust us to use their donations wisely to advance Parkinsons research and care, said Sean Kramer, senior vice president and chief development officer.

The complete Charity Navigator rating review of the Parkinsons Foundation can be found at CharityNavigator.com.

RELATED ARTICLES

Popular Articles