Judie Found That Her Disabled Person’s Railcard Did Not Just Cut The Cost Of Travel But Helped
Well you can buy a railcard, disabled persons railcard and you get, I think its half price each. My friend takes me down to London. Weve been to the Parkinsons Carol Service two, two Christmases now and various other events that theyve had on in London. And its wonderful to go by train. If you go in your wheelchair and make the rail company aware that youre going and what times youre going they are absolutely brilliant. The first time I tried it was two years ago when we went to the Carol Service. And we got on at Northampton and we were going to Euston and the guard was there to meet us. They knew which carriage we were going in and we were, planned to be back for about twenty past ten at night and, no half past ten. And we got to the station at twenty past ten and this gentleman jumped out from behind a post and he said, You must be my two ladies for Northampton. Ill take you up. And he took us up, made us a cup of coffee, and he said, Ill come and fetch you when the train comes into the platform and put you in the carriage. And, British Rail are criticised but they are good if you, if you tell them. If you dont tell them you cant expect the help. But they were very good.
Forget Fava Beans For Parkinsons
Fava beans contain an amino acid known as levodopa. Levodopa is an active ingredient in some Parkinsons medications. Seems like a good reason to eat a lot of fava beans, right?
Nope. Dr. Gostkowski explains that the amount in the beans is tiny compared to whats in your medication. You cant eat enough fava beans to have any effect on your symptoms, he says.
Bananas also have levodopa in them, Dr. Gostkowski says. But, like fava beans, its not possible to eat enough bananas to affect PD symptoms. Of course, if you like fava beans or bananas, enjoy! But dont go overboard or expect them to work like medication. Eat a variety of fruits, veggies, legumes and whole grains for balance.
How To Ease The Transition
Frank discussions with family members and doctors are often enough to convince people with Parkinsonâs disease to modify their driving. Some people may need additional input from a support group, lawyer, or financial planner to ease the transition.
Some people with Parkinson’s disease can continue driving under strict guidelines, although the long-term goal will still be to eventually stop driving. Guidelines for limited driving may include:
- Drive only on familiar roads
- Limit drives to short trips
- Avoid rush-hour traffic and heavily traveled roads
- Restrict drives to daylight hours during good weather
Itâs important for family and friends to find ways to help their loved one reduce their need to drive. These include arranging for groceries, meals, and prescriptions to be delivered to the home, or for barbers or hairdressers to come to the home.
Itâs also important to help your loved one become accustomed to using alternate methods of transportation, such as:
- Rides from family and friends
- Taxi cabs
- Public buses, trains, and subways
- Walking
Your local Area Agency on Aging can help you find transportation services for a loved one. Eldercare Locator, a service of the U.S. Administration on Aging, can also assist. Its phone number is 800-677-1116,
If your loved one refuses to voluntarily limit or stop driving, despite a demonstrated need to do so, you may need to take more aggressive steps, such as:
- Hiding the car keys
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Be Honest With Yourself And Your Doctor
It is important to discuss alcohol consumption with your doctor to make sure you are approaching it safely. Elements of PD, including motor symptoms such as bradykinesia and dyskinesia , will vary from person to person, so its important to make decisions based on your medical history.
Taking into account environmental factors such as how central alcohol is to your social life can affect the decisions you make. Be honest with your doctor about your habits and preferences remember, your doctor wants to work with you to make your symptoms as manageable as possible, not to judge or shame you.
As you decide how alcohol may fit into your life post-diagnosis lifestyle, there are many factors to consider, such as the type of alcoholic beverage, your other risk factors, and your neurologists recommendations specific to your medical history. Most importantly, monitor how you feel when you drink alcohol and be willing to have open and honest conversations about drinking with your doctor and other important people in your life.
I am not even a big drinker, but miss the odd one, wrote a MyParkinsonsTeam member. So, I had an alcohol-free beer, which tasted OK, to be honest.
How Can I Talk To A Loved One About The Progression Of Their Driving
The ability to drive is an important component of self-esteem and independence for many.
Your loved one may therefore get very emotional once approached about the progression of their driving. You can first acknowledge their good behaviours and then share your concerns without making them feel guilty.
You and your loved one can determine a transitioning schedule together based on the appearance of warning signs indicating that they should stop driving.
If your loved one shows resistance, talk about potential risks for them and others if they continue driving unsafely. Finally, talk about it with their care team to get help.
With time, you may no longer be able to drive. You can use alternative means of transportation such as:
- Taxi
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Bump Up Your Fiber Intake
A high-fiber diet is a proven way to avoid constipation, a common problem for people with PD.
Parkinsons can slow down the intestines and cause constipation, Dr. Gostkowski says. Fiber helps keep things moving. There are plenty of high-fiber foods out there, so choose your favorites. Women should aim for 25 grams of fiber per day, and men should get 38 grams.
Tips For People With Parkinsons Disease
If you have early-stage Parkinsonâs disease and hope to continue driving as long as possible, itâs essential to keep up regular exercise that maintains the muscle strength you need to operate a vehicle. Itâs also essential to meet with your doctor and ask them about:
- Medications and other treatment, such as deep brain stimulation, that may treat your symptoms.
- Medication side effects that can interfere with driving safety.
- Referral to a center or specialist who can give you an off-road driving test.
To find a local specialist, contact the Association for Driver Rehabilitation Specialists at 866-672-9466 or visit its website. Your local hospital or rehabilitation center may help you find an occupational therapist who can assess your driving skills. In addition, your stateâs department of motor vehicles may offer driver evaluations.
If you have early-stage Parkinsonâs disease and early-stage or mild dementia — and wish to continue driving — you should seek an immediate evaluation of your driving skills. People with moderate-to-severe dementia should not drive. Some states automatically revoke the licenses of everyone diagnosed with moderate-to-severe dementia.
If you pass a driving evaluation, it doesnât mean that you can continue driving indefinitely. Because symptoms of Parkinsonâs disease and dementia usually worsen over time, itâs important to be re-evaluated every six months and stop driving if you do not pass the test.
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What Symptoms Of Pd May Interfere With The Ability To Drive Safely
Driving is a complex task that requires vision, appropriate motor skills, and higher levels of cognitive function to carry out safely. The most obvious symptoms that can impact driving ability for people with PD are typically motor difficulties such as resting tremors, rigid movements and difficulty maintaining stable posture, which may make it difficult to operate a vehicle safely. What is less obvious, and often more concerning, is that certain non-motor difficulties that can accompany PD may also interfere with driving. These include decreased contrast sensitivity which limits a persons ability to see things in the dark, decreased proprioception, which impairs a persons ability to know where their body is in space , decreased visual spatial skills, which may affect the ability to know how the car is positioned on the road, and difficulties with cognitive function which can impact memory, processing speed, attention, and problem solving. In our own day-to-day evaluations with drivers who have PD, we often find that it is the cognitive impairment that most impacts driving. Drowsiness that accompanies later stages of PD and medication side effects can also impact the ability to drive safely. Non-motor symptoms are less evident than motor symptoms and have been shown to be a more serious risk to driving safety in some people with PD.
Parkinson’s Medication And Driving
Drowsiness can be a side effect of some Parkinsons medications, particularly dopamine agonists. In some cases, medications can cause you to suddenly fall asleep or feel excessively sleepy during the day.
Regulations regarding this vary, so it is important that you check with your countrys regulatory body to confirm their policy. If you experience drowsiness you should stop driving until you have spoken with your doctor. Changing medication can sometimes help, but not always.
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How Does Alcohol Affect Parkinsons Symptoms
In general, alcohol can be harmful to people with chronic conditions. According to the Centers for Disease Control and Prevention , overconsuming alcohol can be a long-term risk factor for a weakened immune system, learning and memory problems, high blood pressure, digestive issues, and various types of cancer. When looking specifically at Parkinsons symptoms, however, reports differ on how alcohol and PD may be linked.
The type of alcoholic beverage consumed may affect whether drinking has an impact on PD. A 2013 study found that the risk for developing Parkinson’s disease appeared to increase depending on the amount of liquor consumed, although no link was conclusively found between drinking wine and the development of PD.
In terms of how long-term alcohol use affects the risk of PD, one study published in 2013 followed people who had been admitted to the hospital with alcohol use disorders for up to 37 years. The study authors found that a history of alcohol abuse increased the risk of admission into the hospital for Parkinsons for both men and women. The study authors suggested that chronically drinking too much alcohol can have neurotoxic effects on dopamine, the neurotransmitter in the brain that is relevant to Parkinson’s disease.
There may also be factors other than observable symptoms such as how alcohol interacts with your medication that are important to consider when making decisions about your lifestyle and drinking habits.
Is It Ok To Limit Driving Instead Of Stopping Completely That Is Only Drive Locally Or During The Day
What we find is that as we age, most people normally begin to restrict their driving. For example, older drivers often prefer to not drive at night, drive in familiar areas only, and limit highway and rush-hour driving. Drivers usually are more comfortable driving in familiar areas that are close to home and driving during the daytime. The more frequently we drive places, the more familiar we are with the streets, traffic patterns, and routes, making it easier for us to navigate. But even when driving locally, the unexpected situation can still occur . Therefore, restricting driving to a persons local area is not always sufficient. It really depends on both the type and level of severity of impairment that the person with PD is experiencing. Restricting driving is most useful when the type and severity of impairment will support the drivers ability to follow through safely with the restriction. Advice from a physician and/or occupational therapist who works with driving can be beneficial in guiding such a decision.
An additional concern arises when drivers who need to restrict their driving fail to do so. Usually those who fail to restrict when necessary have cognitive impairments which limit their insight into the need for restrictions.
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Do I Have To Inform The Saaq Of My Parkinsons Diagnosis
The law requires you to inform the SAAQ of changes in your medical condition within 30 days of your visit to your neurologist.
Your doctor or a health care professional, such as an occupational therapist, will need to assess your ability to drive and fill out a medical examination report that you will need to send to the SAAQ.
Rest assured, very few drivers have their licence revoked after a medical assessment.
This evaluation will have to take place every two years or more depending on the development of your condition. Symptoms may become driving hazards as the disease progresses.
Driving When You Have Parkinson’s Disease
- For most people, driving represents freedom, control and competence. Driving enables most people to get to the places they want or need to go. For many people, driving is important economically some drive as part of their job or to get to and from work.
- Driving is a complex skill. Our ability to drive safely can be affected by changes in our physical, emotional and mental condition. The goal of this brochure is to help you and your health care professional talk about how Parkinsons may affect your ability to drive safely.
How can Parkinsons disease affect my driving?
- Parkinsons disease can cause your arms, hands, or legs to shake even when you are relaxed. It also can make it harder for you to keep your balance, or start to move when you have been still. If you have Parkinsons and you try to drive, you may not be able to:
- react quickly to a road hazard
- turn the steering wheel or
- use the gas pedal or push down the brake.
Can I still drive with Parkinsons?
- Most likely, Yes, in the early stages of the disease, and if you take medicines that control your symptoms.
What can I do when Parkinsons disease affects my driving?
What if I have to cut back or give up driving?
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Driving And Parkinsons Disease
For some people with Parkinsons disease , there may come a time when it is no longer safe for them to drive. This is a very sensitive and fraught issue since for many people, driving is equated with independence, and people with PD may assume that relinquishing driving means a further narrowing and limiting of their world. However, with the right tools, a person can continue to be an active and engaged member of society without driving. Gabrielle Blenden, MSOT, OTR/L and Peggy Barco, OTD,OTR/L, CDRS, SCDCM, FAOTA are occupational therapists at Washington University School of Medicine Program in Occupational Therapy in St. Louis, Missouri, where they work at the Driving and Community Mobility Laboratory. They study the role of neurologic disease on driving and perform comprehensive driving evaluations to determine if a persons driving abilities are intact.
Together with the APDA Greater St. Louis Chapter, they designed a Driving Retirement Workshop a four-session program for people with PD and their families to help plan for maintained independence in the face of driving cessation.
Recently, I was able to ask Ms. Blenden and Dr. Barco about their work.
What Is Parkinsons Disease
Parkinsons disease is a progressive brain disorder that affects mobility and mental ability. If you or a loved one has been diagnosed with Parkinsons, you may be wondering about life expectancy.
According to some research, on average, people with Parkinsons can expect to live almost as long as those who dont have the condition.
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How Does Alcohol Affect Parkinsons Medication
The interaction between Parkinsons medications and alcohol is a common topic on MyParkinsonsTeam. I miss my red wine and whiskey on occasion, one member wrote. I found that it just makes my meds stop working. Another member said, My husband has been told he shouldn’t drink with his meds.
Alcohol can exacerbate the side effects of one of the most common Parkinsons medications, levodopa/carbidopa. Many neurologists recommend avoiding alcohol while taking this drug.
I have to limit myself to one Scotch on the rocks now, a MyParkinsonsTeam member said. I used to have three or four, but the side effects are too bad. Another wrote, Never really a good idea to mix alcohol with meds.
Whether you decide to continue your current drinking habits, cut down, or eliminate alcohol altogether, its important to listen to your body and have open conversations about these topics with your neurologist.
If you find yourself drinking alcohol to cope with other issues, such as depression and anxiety, you may find that healthy practices such as physical activity can help. In addition, participating in activities such as tai chi, yoga, and meditation may help ease the symptoms and complications of PD.
Can I Get A Disabled Parking Permit
If you have trouble walking short distances, you may be eligible for a parking permit for people with disabilities.
Talk to an SAAQ authorized health care professional. They will assess your situation and fill out the disabled parking permit application form if necessary. You will then need to send the form to the SAAQ
The idea that you may one day have to stop driving can be difficult to accept, but being involved in an accident can have a serious impact on you and others.
You and your loved ones can monitor your driving and regularly assess whether you should stop.
Some signs that may be alarming:
- Driving too slow
- Stopping in traffic for no apparent reason
- Non-compliance with road signs
- Getting lost during a familiar route
- Difficulty turning or changing lanes
- Difficulty reading traffic signs or seeing traffic lights in time to react
- Increased car insurance rate due to traffic violations or at-fault accidents
- Problems responding to unexpected driving situations
- Slow reaction to traffic lights
- Several consecutive unsuccessful attempts to park the car
- Tickets for traffic violations
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