Other Places To Find Support
Support groups aren’t for everyone. If they don’t appeal to you, there’s no need to force it. If you were involved in community, religious or hobby-based organizations in your life before Parkinson’s, keep up those ties and friendships. In addition, educating yourself about Parkinson’s, and getting involved with local or national Parkinson’s organizations, can be ways to meet people who share some experiences with you without joining a support group.
Find Support in the Parkinsons Buddy Network
Create connections and find community online in the Parkinsons Buddy Network. Were building an online support system, one buddy at a time.
All Groups Are Currently Meeting On Zoom See Below For Details
PDSupport GroupMeeting every Thursday from 4:00pm 5:30pm Description: These free weekly support group meetings are held from 4:00 pm-5:30 pm for people who have been diagnosed with Parkinsons disease or Parkinsonism. The meetings are facilitated by Roslyn Kleinsinger, LCSW .Click here to register. Please note that you may be required to register even if you have attended a previous meeting. Email or call 479-6119.
Advanced Care Partners Support GroupMeeting 3rd Thursday of the month from 3:00pm 5:00pm Description: This is a gathering where participants speak frankly about concerns and challenges in caring for loved ones with long term to advanced PD symptoms. Open to family caregivers and care partners only. Self-facilitated. Pre-registration required when attending for the first time. Email or call 479-6119.
Mild/Moderate Care Partners Support GroupMeeting 2nd and 4th Wednesdays of the month from 3:00pm 5:00pm Description: This Care Partners Support group addresses the needs of those partners who are caring for someone with mild to moderate symptoms. All care partners are welcome. Self-facilitated. Pre-registration required when attending for the first time. Email or call 479-6119.
Columbia Parkinsons Support Group
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Where To Find A Parkinsons Support Group For Caregivers
Parkinson’s caregivers support groups are excellent sources of information, advice and emotional help. If you care for someone with Parkinson’s disease, you’ll know that the role of a Parkinson’s caregiver isn’t always easy. While being able to care for a spouse or family member and improve their quality of life can be rewarding, it can also be upsetting, frustrating and isolating, sometimes resulting in Parkinson’s caregiver burnout. Therefore, it’s vital that you surround yourself with the support you need. Here’s how and where to find Parkinson’s caregivers support groups.
For Every Moment Of Your Journey
Theres no doubt Parkinsons disease is a journey. And your path is unlike anyone elses. But you can find comfort and learn how to live a full life by gaining information and witnessing the experiences of others. Learn from others. Share your experiences. Realize youre not alone. Joining a support group will give you a sense of collaboration and comfort that can help make life a little easier. Please click on your city to find a support group near you.
COVID- 19 Update: Many support groups have been cancelled to help contain the spread of COVID-19 and keep our community safe. Contact your local group facilitator to learn more about cancellations in your area.
Learn about online support group resources here.
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If You Are A Discussion Moderator
If youre a moderator or a facilitator for a support group for people with Parkinsons disease, or family members or caregivers for people with Parkinsons disease, you play a very important role in helping the group to be a success. You can start by setting an agenda for each meeting so everyone knows what to expect.
A few other tips for getting the conversation flowing:
- Start with opening questions that help people to settle in and get comfortable.
- Make sure everyone knows the ground rules and expectations.
- Give everyone the opportunity to speak and to be heard.
- Encourage members to listen when others are speaking.
- Be respectful if some people choose not to share.
- Use a handheld microphone in case some people are soft-spoken.
- Develop some strategies to handle situations in which a few people monopolize discussions.
- Ask group members to brainstorm topics for future discussions or suggestions for guest speakers.
You also might check out resources from organizations like the Parkinsons Foundation that can help you plan your meetings, encourage participation, and foster the connections that are so vitally important to support group members.
Attending A Peer Support Group For The First Time
Often the most difficult step is walking through the door for the first time. Once this decision is made, most people find that attending a Peer Support Group was helpful and supportive.
If you are particularly nervous, have a chat to the group facilitator either on the phone or immediately before the meeting. They can help ensure you feel welcome. You may even like to bring a friend or family member along for moral support.
There are a couple of things to keep in mind if you are attending a Parkinsons Peer Support Group for the first time:
- Peer support is not a substitute for medical treatment or professional counselling, and it is not a replacement for family and friends
- Parkinsons Peer Support Groups are open to people at all stages of the illness. It can be confronting to attend a group where there may be people with different or more advanced Parkinsons symptoms than yours. Remember that Parkinsons is progressive and that everyones symptoms and experience of Parkinsons is different, so one persons experience is not an indication of what your experience will be
- In some areas Parkinsons Peer Support Groups are also open to individuals with conditions that are similar to Parkinsons but have little support of their own .
- A Parkinsons Peer Support Group is a welcoming and accepting environment, where members individuality, privacy, and life experiences are respected.
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Exercise And Healthy Eating
Regular exercise is particularly important in helping relieve muscle stiffness, improving your mood and relieving stress.
There are many activities you can do to help keep yourself fit. If you’re newly diagnosed or your symptoms are mild, you could try vigorous activities like team sports, cycling and running.
If your symptoms are complex or progressing, you can try less strenuous activities such as walking, or simple stretching and strengthening exercises.
You should also try to eat a balanced diet containing all the food groups to give your body the nutrition it needs to stay healthy.
Parkinsons Support Group Topics
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Best For Variety: Parkinsons Foundation
The Parkinsons Foundation was formed from the merging of two other foundationsthe National Parkinson Foundation and the Parkinsons Disease Foundationwith the mission being to improve the lives of and ultimately find a cure for people living with PD.
The Parkinsons Foundation has a vast network of free, in-person support groups located throughout the country. Most of them are for anyone living with PD, but some are geared toward a certain audience .
The Parkinsons Foundation also offers a free online support community called PD Conversations. Here, individuals can connect with others living with PD, as well as get their questions answered by PD experts. To focus their interactions, the online community is broken up into discussion groupsnewly diagnosed, symptoms of PD, Spanish-speaking patients, and much more.
The Parkinsons Foundation also offers health and wellness classes and free educational resources through its local networks. The organization also raises awareness and funds through various gatherings, such as its annual fundraising event called the Moving Day Walk.
Best For Starting Out: Dailystrength Parkinsons Disease Support Group
DailyStrength is a division of Sharecare, which was created by WebMD founder Jeff Arnold and the famous Dr. Oz in 2009. The DailyStrength Parkinsons Disease Support Group is a free and welcoming online support community with more than 400 members and 3,000 posts.
The mission of the group is centered around empowering and inspiring each other to overcome PD-related and life challenges.
Overall, the DailyStrength website is inviting and easy to navigate, and registration is straightforward and quick. Posts are informational, practical, and thoughtful. This is, perhaps, a good place to start for people looking for a smaller, more intimate online support group that is not overwhelming or associated with a national organization.
Even though the site is not moderated, to keep the support group safe and positive, DailyStrength has a set of guidelines that the members are asked to follow.
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Peterson For Parkinsons Support Groups
Active with Parkinsons
PFP Care and Share Small group for people with Parkinsons
PFP Care Partners Small group for those who support people with Parkinsons
PFP Franklin Parkinsons Support Group
PFP Mt. Juliet Parkinsons Support Group
PFP Paris TN Support group
Midsouth PD Memphis Foundation & SG
Murfreesboro Senior Center PD Support Group
Team Fox Young Professionals Parkinsons Group
A Nonprofit 501 c 3 organization. EIN 26-4144151
Sign up to receive the latest foundation news and events.
This Web site contains links to other Web sites that are maintained by third parties, including Web sites of other entities, each of which is independent of the Peterson Foundation for Parkinsons . PFP is not responsible for the contents of any third-party Web sites and shall not be liable for any claims or alleged damage or injury arising from the contents of such Web sites. Any links to other Web sites are provided as a convenience to you as a user of this website.
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Parkinsons Support Group Albuquerque
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Parkinsons Support Group
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What Are Parkinsons Caregivers Support Groups
Parkinsons caregivers support groups are meetings designed for the family members and loved ones of people with Parkinsons disease . If you live with or care for someone with advanced PD, you may find support groups a great source of comfort and a chance to connect with other caregivers. If someone you love has been newly diagnosed with Parkinsons, support groups can help you and your loved one come to terms with their condition, seek out information and know what to expect.
Here are some of the benefits of Parkinson disease support groups for caregivers:
- Connection: As a caregiver, you may not have many opportunities to socialize. Attending a Parkinsons caregivers support group is a chance to connect with others who understand your situation.
- Advice: Support groups arent just for emotional support they can also be great for practical advice, especially from others who have been where you are.
- Education: The more you can learn about your loved ones condition, the more you can help them. A support group should provide you with plenty of information and actionable advice both in terms of caring for someone with Parkinsons disease and making sure your own needs are met.
- Knowing you are not alone: Being a caregiver can be isolating at times. Simply knowing youre not alone can help relieve depression and equip you with coping skills.
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Parkinsons Foundation Mid Atlantic:
This National PD organization has a local presence in the DC and Baltimore area. Our favorite feature of this website is the Parkinsons Library. You can search topics that you are interested in or pick from a wide selection of topics. More information than you could ever imagine, including an entire section devoted to caregivers.
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Apda In Your Community
The American Parkinson Disease Association nationwide network provides information and referral, education and support programs, health and wellness activities, and events to facilitate a better quality of life for the Parkinsons community. It is this grassroots structure that distinguishes APDA from other organizations serving people with Parkinsons disease.
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Starting A Support Group
Some tips to help you start your own support group:
Choose the group’s target audience.Is it just for people with Parkinson’s, or are care partners and family members invited as well? If you live in a larger city, you can consider gearing the meeting toward a more specific group, such as people with young-onset Parkinson’s disease.Churches, community centers, libraries and other spaces with meeting rooms are great choices. Because members may want to share personal stories, more public spaces like coffee shops and restaurants may not be ideal. You can also decide if your group should meet monthly, twice a month or even weekly.
Figure out a format for the meetings. Will there be one “leader” who facilitates discussions or will members take turns hosting the meeting? From time to time, try to schedule guest speakers such as area neurologists and allied care professionals, like physical therapists and nutritionists. If there are exercise groups for people with Parkinson’s in your area, invite them to give a demonstration and share their services. Of course, leave plenty of time for simply chatting about life with Parkinson’s disease, too.
Spread the word. Ask your doctor if you can share flyers in the office, and let your local hospitals know about the group, too. Bring flyers to libraries, coffee shops and other community spaces. If you’re tech-savvy, start a Facebook group or page, or make a basic website. These are also good ways to keep in touch with members.
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How To Open Up In A Group Setting
If youre new to talking in a support group, you may feel a little uncertain. Thats totally normal, as any experienced support group member can tell you.
First, contact the facilitator and ask about the group. Try to learn as much as you can about the group culture and what will be expected of you. Some groups will assign you an informal buddy to help get you acclimated to the group, so you might ask the moderator about that possibility.
Then when you get to your first meeting, consider these strategies to help you get integrated and begin sharing:
Parkinson Association Of The Carolinas Virtual Support Group
We know in person meetings may not be available in your area and, often times, finding meetings that fit our schedules is difficult, so we are now offering a FREE monthly Virtual Support Group ONLINE!
Our next scheduled meeting will take place on Wednesday, November 3rd at 2:00 P.M.
Join the PAC team Holly Kennedy and Janet Ceraldi to discuss Fall Prevention Considerations for People with Parkinsons Disease.
View Support Group Meetings Map in a full screen map.
Please contact a PAC team member for more information on support groups including contact information and current status at 245-2786.
If you would like to submit your support group for public listing or would like to submit changes to a listed support group, please contact .
Why join a support group?
People who have been through, or are going through, a similar circumstance can do more than sympathize with you they can relate to your situation and keep you from feeling like you are alone. Support group members offer firsthand insight into many aspects of navigating the disease.
For some people, the most difficult step is walking through the door, but most find that once they make the decision, the experience is helpful and supportive. Remember, a support group is not a substitute for medical treatment or professional counseling and it is not a replacement for family and friends.
When do support groups meet?
What can PAC do to help a support group?
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