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Parkinson’s Disease Facts And Statistics

The Impact Of Parkinsons Disease On Overall Health

Neuro Talk: Parkinson’s Disease Statistics

Based on the Blue Cross Blue Shield Health Index, the overall health of those affected by Parkinsons is significantly lower than the general population. In 2017, the average BCBS Health Index for someone aged 30-64 with Parkinsons was 57, compared to 88 for the entire commercially insured population in this age range. This translates to an average of 10.7 years of healthy life lost for those with the condition compared to 3.4 years for the 30-64 population as a whole.4

Caring for someone with Parkinsons Disease

The majority of Parkinsons patients are cared for by informal caregivers, such as a family member. The physical, mental and emotional work this requires can be significant. The Impact of Caregiving on Mental and Physical Health found that caregivers have 26% poorer health compared to a benchmark population, as measured by the BCBS Health Index. In addition, a national survey conducted by the Blue Cross Blue Shield Association found that 1 in 4 unpaid caregivers are feeling more stress trying to balance work and family due to COVID-19.5

Impact On Families And Carers

Informal carers spendmany hours dailyproviding care for people living with PD.This can be overwhelming. Physical, emotional and financial pressures can cause great stress to families and carers, and support is required from the health, social, financial and legal systems. Useful support resources from other conditions can be drawn upon, such as WHOs iSupport programme for dementia.

Diagnosis And Management Of Parkinsons Disease

There are no diagnostic tests for Parkinsons. X-rays, scans and blood tests may be used to rule out other conditions. For this reason, getting a diagnosis of Parkinsons may take some time.

No two people with Parkinsons disease will have exactly the same symptoms or treatment. Your doctor or neurologist can help you decide which treatments to use.

People can manage their Parkinsons disease symptoms through:

  • seeing a Doctor who specialises in Parkinsons
  • multidisciplinary therapy provided for example, by nurses, allied health professionals and counsellors
  • deep brain stimulation surgery .

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The Importance Of Establishing Parkinsons Prevalence Numbers

Parkinsons Prevalence estimates will help the Parkinsons Foundation attract the attention of federal and state government as well as the pharmaceutical industry to the growing need and urgency in addressing PD. This is an important first step to better understanding who develops PD and why.

The next phase of this study will be to determine the rate of PD diagnosis or incidence, how that has changed over time and what is the rate of mortality among those affected by PD. Determining the prevalence and incidence will allow the PD community to effectively advocate for additional money and resources necessary to support Parkinsons research.

Parkinsons Foundation Prevalence Project numbers highlight the growing importance of optimizing Parkinsons care and treatment for people with Parkinsons, which would help future caregivers and ease the strain on health and elder care systems.

Through this study, the Foundation works to better understand Parkinsons with the goal of solving this disease. Establishing these numbers and using them to educate the PD community and influence legislation will help the Foundation provide tailored support for under-resourced PD populations across the U.S.

The published study is available in the Parkinsons Foundation scientific journal, npj Parkinsons Disease.

Parkinsons Disease Facts And Statistics: Did You Know

Parkinsons Disease  Arnprior &  District Family Health Team

Researching Parkinson’s disease facts and statistics can help prepare you for life after your diagnosis. If you’ve recently been told you have Parkinson’s disease, you probably have a million questions surrounding your treatment options, symptoms and prognosis. During this time, it’s important to seek information from trustworthy sources so that you can make well-informed decisions about your health. Learning Parkinson’s disease facts and statistics can improve your quality of life with the condition, so here’s what you need to know.

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Having Parkinsons Is Not A Death Sentence

Parkinsons disease is not fatal, and your life expectancy depends highly on the type of Parkinson’s you have. If the type of disease isn’t causing issues with brain function, you can potentially live as long as people without the disease.

However, if someone has an atypical case of the condition that occurs at the same time as other conditions such as dementia, this can negatively affect their life expectancy.

Causes Of Parkinsons Disease

At present, we do not know the cause of Parkinsons disease. In most people there is no family history of Parkinsons Researchers worldwide are investigating possible causes, including:

  • environmental triggers, pesticides, toxins, chemicals
  • genetic factors
  • combinations of environment and genetic factors

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What Is Parkinson’s Disease

Parkinsons disease occurs when brain cells that make dopamine, a chemical that coordinates movement, stop working or die. Because PD can cause tremor, slowness, stiffness, and walking and balance problems, it is called a movement disorder. But constipation, depression, memory problems and other non-movement symptoms also can be part of Parkinsons. PD is a lifelong and progressive disease, which means that symptoms slowly worsen over time.

The experience of living with Parkinson’s over the course of a lifetime is unique to each person. As symptoms and progression vary from person to person, neither you nor your doctor can predict which symptoms you will get, when you will get them or how severe they will be. Even though broad paths of similarity are observed among individuals with PD as the disease progresses, there is no guarantee you will experience what you see in others.

Estimates suggest that Parkinsons affects nearly 1 million people in the United States and more than 6 million people worldwide.

For an in-depth guide to navigating Parkinsons disease and living well as the disease progresses, check out our Parkinsons 360 toolkit.

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A Word From Get Meds Info

Women and Parkinson’s disease

Because of modern-day medicine and other forms of treatment, a person with Parkinsons disease can manage it effectively and many times expect to live out a normal and long life. If you have been diagnosed with Parkinsons disease and are having a difficult time coping with the news, its important that you seek out support groups and follow research advancements in the area.

If you love someone with Parkinsons disease, becoming an advocate or volunteering with a Parkinsons organization can be beneficial to spreading awareness and helping others understand the disease better.

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There Are Some Subtle Early Warning Signs

Along with the early motor symptoms such as tremors and stiffness, other early warning signs of the disease can include the loss of smell and a soft voice. Small handwriting is also a telltale sign that someone may have Parkinsons, especially if over time it continues to get smaller and more crowded.

Trends In The Pd Incidence

Globally, the incident number of PD was 1,081.72 × 103 in 2019, which increased 159.73% since 1990. The overall age-standardized incidence rate was 13.43/100,000 in 2019, and it increased with an annual average of 0.61% from 1990 to 2019 . Compared to female patients, male patients had a larger incident number, and a higher increasing trend in ASIR . Among the age groups, the high incident numbers of PD were observed in the patients aged over 65 years, and the largest increasing percentage occurred in the age group of over 80 years .

Table 1. The changes in incidence and prevalence of Parkinson’s disease worldwide, and in sexes, SDI areas, and regions, 19902019.

Figure 1. Trends in the ASR of incidence, prevalence, and YLDs of Parkinson’s disease in global, SDI areas and geographic regions from 1990 to 2019. ASR, age-standardized rate SDI, sociodemographic index YLDs, years lived with disability.

Figure 2. The distribution of Parkinson’s disease incidence in age groups, SDI areas and geographic regions from 1990 to 2019. was the incident number in age groups was the ASIR in SDI areas was the incident number in geographical regions. ASIR, age-standardized incidence rate SDI, sociodemographic index.

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What Is The Trend Over Time In The Prevalence And Incidence Of Parkinsonism In Canada

Between 20042005 and 20132014, the number of Canadians living with diagnosed parkinsonism increased from approximately 61,000 to 84,000, while the number of Canadians newly diagnosed increased from approximately 8,000 to 10,000. However, during the same period, there was no significant change in the age-standardized prevalence proportion, which remained at 0.4%, or the incidence rate, which went from 51.6 per 100,000 to 52.6 per 100,000. The sex differential also remained constant over time for both indicators .

Figure 3: Age-standardized prevalence and incidence of diagnosed parkinsonism, including Parkinsons disease, among Canadians aged 40 years and older, by sex, 20042005 to 20132014

Figure 3: Age-standardized prevalence and incidence of diagnosed parkinsonism, including Parkinsons disease, among Canadians aged 40 years and older, by sex, 20042005 to 20132014

Indicator
67.8 40.3

Notes: Age-standardized estimates to the 2011 Canadian population. The 95% confidence interval shows an estimated range of values which is likely to include the true value 19 times out of 20. The 95% confidence intervals of the prevalence estimates are too small to be illustrated.Data source: Public Health Agency of Canada, using Canadian Chronic Disease Surveillance System data files contributed by provinces and territories, July 2017.

Who Is Affected By Parkinsons Disease

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Parkinsons disease affects both men and women. Statistically, however, men have a slightly higher chance of developing the disease. The risk of developing Parkinsons disease also increases with age, with the average age of onset being 65 years old. Five to ten per cent of people develop the condition before the age of 40 years old. When symptoms appear in people aged 21-40, this is known as young-onset Parkinsons disease. Juvenile Parkinsons disease is the term used when symptoms appear before the age of 18 years old, although this is extremely rare.

To-date, no one knows exactly why people get Parkinsons disease, but viral infection or environmental toxins may play a role. People with a parent, sibling or child with Parkinsons disease, are twice as likely to get it as people in the general population.

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How Many Canadians Live With Parkinsonism And How Many Are Newly Diagnosed Each Year

Based on the latest estimates available , in 20132014, approximately 84,000 Canadians aged 40 years and older were living with diagnosed parkinsonism and 10,000 Canadians were newly diagnosed with this condition . The age-standardized prevalence was 1.5Footnote i times higher among males than among females , and similarly the age-standardized incidence was 1.7Footnote i times higher among males than females . The epidemiological burden of parkinsonism increases with age. In 20132014, when comparing estimates among Canadians aged 85 years and older vs. those aged 40-44 years, the prevalence of the condition was 169Footnote i times higher in the older age group , while the incidence was 48Footnote i times higher in the older age group .

Figure 1: Prevalence of diagnosed parkinsonism, including Parkinsons disease, by sex and age group, Canada, 20132014

Figure 1: Prevalence of diagnosed parkinsonism, including Parkinsons disease, by sex and age group, Canada, 20132014

Age group
44.7 55.1

Note: The 95% confidence interval shows an estimated range of values which is likely to include the true value 19 times out of 20. Data source: Public Health Agency of Canada, using Canadian Chronic Disease Surveillance System data files contributed by provinces and territories, July 2017.

Screening And Early Detection

There is no specific test that can tell in advance whether someone will one day develop Parkinsons disease. Most of the time, people who develop the condition did not have any early signs in the years before the disease started to cause symptoms. Many people with Parkinsons disease had a physically active lifestyle before the disease started to have any effects.

Parkinsons disease is diagnosed based on a physical examination, which includes a comprehensive neurological examination. Sometimes brain imaging or other tests are ordered to see whether another brain condition, such as a stroke, brain injury, or a tumor, could be causing the symptoms.

There is no definitive laboratory test or other test to confirm a diagnosis of Parkinsons disease.

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What Are The Management Options For Canadians Living With Parkinsonism

There is currently no cure for Parkinsons disease and most other parkinsonism cases. However, treatment options are available to help mitigate the symptoms and health impacts associated with these conditions. Most often the primary treatment is pharmacological, but it may also include other therapeutic options and, in the case of Parkinsons disease, surgical interventions. Studies have shown that specially tailored exercise programs, supervised by physiotherapists or other trained professionals, may help affected individuals maintain or improve their physical functionality and general well-being.Footnote 2 Footnote 3 Footnote 4 Footnote 5

Box 1: What’s in the data?

The data used in this publication are from the Canadian Chronic Disease Surveillance System , a collaborative network of provincial and territorial chronic disease surveillance systems, led by the Public Health Agency of Canada . The CCDSS identifies chronic disease cases from provincial and territorial administrative health databases, including physician billing claims and hospital discharge abstract records, linked to provincial and territorial health insurance registry records using a unique personal identifier. Data on all residents eligible for provincial or territorial health insurance are captured in the health insurance registries.

Definition of diagnosed parkinsonism, including Parkinsons disease, in the CCDSS

From Symptoms To Diagnosis

Parkinson’s Disease & Medication – What’s New

The average age at which people first experienced symptoms was 64.4 years, with a diagnosis of Parkinsons 1.9 years later at 66.2. The period between symptom onset and diagnosis was longer for younger peoplean average of almost 7 years . Physicians may initially rule out Parkinsons in younger people, since it predominantly affects older adults.Note 9

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Realities Of Living With Parkinsons

Parkinsons disease is unpredictable, so it can be difficult to make any plansbig or smallwithout worrying you have to cancel at the last minute. Living with the painful symptoms, both physical and mental, can be draining.

Daily tasks may require a lot of energy for someone with Parkinson’s disease to complete or are taken away altogether. For example, a person without a chronic disease can drive to the grocery store, come home and do laundry, cook dinner for their family, and still have time to relax at the end of the day. However, a person with Parkinson’s will have to put much more effort and time into each task and may not be able to drive at all.

As the disease progresses to its later stages, many people are forced to give up their independence and autonomy when it comes to taking care of themselves. This makes coping with a diagnosis and the disease incredibly difficult.

However, with the right treatments, you can slow disease progression and remain independent for as long as possible.

Analysis Of The Influential Factors Of Eapc

The ASR in 1990 served as the disease reservoir at baseline, and the HDI reflected the level of human development, and the availability of health resources in settings, including regions and countries. The EAPCs of the incidence, prevalence, and YLDs had a negative association with the corresponding ASRs in 1990 . Meanwhile, only the EAPCs of incidence had a positive association with HDI in 2019 , which further explained that the trends of the ASIR increased pronouncedly in the high SDI regions and countries from 1990 to 2019.

Figure 7. The association s between EAPCs and ASRs in 1990 at the national level. EAPCs of incidence , prevalence , YLDs had negative associations with ASR in 1990, respectively. The association was calculated with Pearson correlation analysis. The size of circle is increased with the numbers in 1990. EAPC, estimated annual percentage change ASR, age-standardized rate YLDs, years lived with disability.

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Trends In The Pd Prevalence

The global prevalent number of PD increased 155.50% from 1990, and reached 8,511.02 × 103 in 2019. The overall ASR of prevalence was 106.28/100,000 in 2019, and showed an upward trend from 1990 to 2019 . Compared with female patients, male patients had a higher prevalence, and showed a larger increasing trend . Among the age groups, the pronounced high prevalent numbers occurred in patients aged over 65 years , and the largest increasing percentage occurred in the age group of over 80 years .

All SDI areas presented increasing trends in the ASR of PD prevalence, and the most pronounced one was seen in the middle SDI area . At the regional level, the largest prevalent number in 2019 appeared in East Asia , while the lowest one occurred in Oceania . The increasing percentage of prevalence varied from 27.54% in Eastern Europe to 256.90% in Central Latin America. In 2019, the ASR of prevalence ranged from 55.94/100,000 in Eastern Sub-Saharan Africa to 145.44/100,000 in East Asia. Trends in the ASR of prevalence increased in most regions, particularly East Asia . Whereas, only Oceania had a minor downward trend . A positive association was observed between the ASRs and SDI in 2019 among regions .

Exercise Helps Manage Parkinsons Symptoms

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For people with Parkinsons, exercise is more than healthy it is a vital component to maintaining balance, mobility and activities of daily living. Exercise and physical activity can improve many PD symptoms. The Parkinsons Outcomes Project shows that people with PD who start exercising earlier and a minimum of 2.5 hours a week experience a slowed decline in quality of life compared to those who start later. Tai chi, yoga, Pilates, dance, weight training, non-contact boxing and more all have positive effects on PD symptoms. Watch our Fitness Friday videos.

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