Details Of The Mjffs Parkinsons Progression Markers Initiative
The MJFF is sponsoring an observational clinical study called the Parkinsons Progression Markers Initiative , which aims to identify biomarkers of PD by studying recently diagnosed patients and healthy subjects.
The study enrolled 4,000 PD patients across 50 sites worldwide. A database was created, which was made available to researchers in the field. The MJFF generates antibodies and makes them available to researchers at a low cost. LRRK2 were the first high-quality antibodies generated in June 2011.
In December 2021, the MJFF announced an expansion of the PPMI to increase enrolment in the study to 100,000 people with or without PD by 2023.
The organisations Fox Trial Finder initiative encourages PD patients to participate in clinical trials to boost new findings in the field. This aims to help volunteers consider trial options and researchers connect with the volunteers.
Leon Gregory Keller Jr
Leon Gregory Keller, Jr. died Aug. 9. He was 79.
Keller was born Oct. 31, 1941 in Louisville, Kentucky. He grew up in a military family and started school in Puerto Rico. He lived and studied all over the U.S. and attended high school in Germany and Missouri. He graduated from Northwestern University in 1964 and obtained his Ph.D. in physics from the University of Wisconsin-Madison in 1970.
He served his country as a physicist and a system designer at the Lawrence Livermore National Laboratory from 1972 to 2018. His designs were cornerstones of the U.S. nuclear deterrent during the Cold War and remain so today. He had a unique sense for design optimization and created some of the best performing warheads while including modern safety features for the benefit of the warfighters and public. Beyond his outstanding technical achievements, he was a patient and insightful mentor and role model for several generations of physicists and designers at LLNL.
He is survived by his wife, Janice, two sons, David Keller and Michael Keller, daughter Tracy Smith, stepson Michael May, brother, Karl Keller and sister Judy Davidson. He also leaves behind eight grandchildren. He was expecting his first great grandchild in December.
Due to COVID-19, a celebration of life will be held sometime in the future. The family asks that any donations in his memory be made to research on Parkinsons Disease such as the Michael J. Fox Foundation.
LLNL.GOV
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Michael J Fox Foundation For Parkinson’s Research And Parkinson Alliance Announce Transition Of The Parkinson’s Unity Walk
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Parkinson’s Unity Walk annual fundraiser that gathers thousands from the PD community in Central Walk to transition from Parkinson Alliance to Michael J. Fox Foundation as of October 1, 2022
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Unity Walk staff will work closely with the Foundation in first year to maintain continuity
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Goal is to streamline and grow mission of Parkinson’s Unity Walk to support the broad needs of the unified Parkinson’s community
NEW YORK, Sept. 8, 2022 /PRNewswire/ — The Michael J. Fox Foundation for Parkinson’s Research and The Parkinson Alliance announced today that the Parkinson’s Unity Walk a fundraising event held each April in New York City’s Central Park will be hosted by MJFF starting in 2023.
The goal of the Unity Walk has always been to bring a unified Parkinson’s disease community together around a shared goal: to cure Parkinson’s. Since its inception in 1994, the event has dramatically scaled from 200 participants in its first year to 11,000 around the United States and more than 30 countries by 2019. To date, the event has fundraised more than $29 million for Parkinson’s programs and research. In order to meet the growing scale of the Unity Walk’s mission and reach more people impacted by PD, the Unity Walk Board of Directors has decided to transition the event to MJFF in order to leverage the Foundation’s robust engagement onramps and network.
Sustaining the Unity Walk’s Tradition of Uniting the PD Community
About The Michael J. Fox Foundation for Parkinson’s Research
Michael J Fox Reflects 30 Years After Parkinson’s Diagnosis: I Still Am Mr Optimist
In 1991, there were few bigger names in show business than Michael J. Fox. Millions around the world knew him for his work in the “Back to the Future” films, and the TV series “Family Ties.” But away from the success and celebrity of Hollywood, he was about the begin the biggest fight of his life.
Fox was diagnosed with Parkinson’s disease when he was 29 years old. He was newly married to his wife, actress Tracy Pollan, who he met on the set of “Family Ties,” in the 1980s.
“So very early in the marriage she got this dumped on her. And the moment that I told her I was realizing was the last time we cried about it together. We haven’t cried about Parkinson’s since. We’ve just dealt with it and lived our lives. But we cried about it that first time,” Fox recalled to “CBS Mornings” co-host Nate Burleson.
Fox said the couple didn’t know what Parkinson’s meant and were about to enter uncharted territory.
“We didn’t know what to expect. We didn’t know what would happen. We didn’t know. You know, no one could say when it would have more effects. More symptoms than what I had, which was a twitch, twitching pinkie,” said Fox. “But they just said it was coming.”
More than two decades later and after several acting jobs that allowed him to work without hiding his condition, the 60-year-old is now retired from acting.
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Deepa Kumaraiah Md Mba
Senior Vice President and Chief Medical Officer
Deepa Kumaraiah, M.D., is Senior Vice President and Chief Medical Officer at NYP. In this role, she oversees both enterprise-wide medical affairs and the integrated Quality and Performance Improvement program. She also oversees the Clinical Service Lines, where she provides leadership, management, and strategic vision for the integration of those efforts across all NewYork-Presbyterian hospitals and the NYP Medical Groups. Dr. Kumaraiah joined NYP in 2012 and previously served as the Senior Vice President, Service Line Integration and Chief Physician, NewYork-Presbyterian Medical Groups and before that, as Vice President and Associate Chief Medical Officer of Service Lines and Clinical Strategy. She is an Assistant Clinical Professor of Medicine at Columbia University Irving Medical Center, where she continues to practice in the cardiac intensive care unit. Prior to joining NYP, Dr. Kumaraiah was a health care consultant at McKinsey and Company, focused on health care system transformation. She completed her cardiovascular fellowship training at NYP/CUIMC and her internship and residency at Massachusetts General Hospital. She earned her medical degree from the University of Pennsylvania, her Masters of Business Administration from the Wharton School, and her Sc.B. from Brown University. She has been named NewYork-Presbyterian Physician of the Year and is a Fellow of the New York Academy of Medicine.
Michael J Fox Foundation Significantly Expands Parkinsons Study
Related tags:neurologic, , Research, ,
The Michael J. Fox Foundation for Parkinsons Research has announced a significant expansion of its Parkinsons Progression Markers Initiative . The organization reports it is reopening the $450m USD study triple enrollment across nearly 50 sites sited in 12 countries, and to recruit 100,000 online participants it has enrolled 1,400 participants since its launch in 2010.
To learn more about the expansion, the foundations goals, the technology driving the study, and what it might mean for Parkinsons researchers and patients, Outsourcing-Pharma connected with two experts:
- Sohini Chowdhury, deputy CEO and head of research for the Michael J. Fox Foundation
- Christine Lemke, CEO and co-founder of Evidation
OSP: Could you please share how the Fox Foundation and Evidation came to work togetherhave you partnered on any projects with them before, or any other notable organizations?
CL: Evidation and the Michael J. Fox Foundation for Parkinsons Research worked hand in hand to design a privacy-conscious, easy-to-use study experience for the online portion of the Parkinsons Progression Markers Initiative. Evidation has deep experience designing longitudinal studies that harness real-world data including electronic patient-reported outcomes weve done hundreds of studies across real-world therapeutic areas.
OSP: Please describe the Evidation technology the PPMI is built upon, and how it will benefit Parkinsons researchers and patients.
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Survey On Cannabis And Parkinsons
Recognizing the lack of information on the subject, the foundation reached out to its network of patients. They wanted to learn more about individual experiences using cannabis and hosted a survey through Fox Insight. They partnered with the University of Colorado and in total, 1900 people participated. The results of the survey were published back in January but the MJFF wanted to go further so, they wrote out a guide.
Michael J Fox Foundation For Parkinsons Research
Founded:
Mission:To ensure the development of a cure for Parkinsons disease within this lifetime through an aggressively funded research agenda.
About the Organization:Actor Michael J. Fox established the foundation in May 2000, shortly after announcing his retirement from the ABC television show Spin City. In 1998, he had publicly disclosed that he had been diagnosed with young-onset Parkinsons disease seven years earlier. His foundation has become the single largest funder of Parkinsons disease research outside of the U.S. government, with research and fundraising efforts extending across the country and around the world. To date, it has funded nearly $50 million in research, either directly or through partnerships.
Web Site:The MJFF Web site supplies a biography of Michael J. Fox in-depth information about Parkinsons disease a description of foundation-funded research, including grants awarded articles and eventsresources for patients, caregivers, and communities frequently asked questions about the foundation and a newsletter, which is available, along with updates, via e-mail. The most recent news and research are posted on the homepage.
Funding:The foundation is supported primarily through gifts from individuals, including memorial gifts, and from proceeds from benefits and other special events.
Contact:Phone:Fax:
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Wilhelmina M Manzano Rn
Group Senior Vice President & Chief Nursing Executiveand Chief Operating Officer for Perioperative Services, NewYork-Presbyterian
Wilhelmina M. Manzano, MA, RN, NEA-BC, FAAN, is Group Senior Vice President & Chief Nursing Executive and Chief Operating Officer, Perioperative Services for NewYork-Presbyterian. As Chief Nursing Executive she leads the Department of Nursing and sets the vision and strategic direction for nursing across NYP. As COO for Perioperative Services, she provides strategic leadership and oversight, sets goals and strategies for integration, alignment, and standardization, and ensures optimization of both clinical and business operations, and promotes a culture of safety. Ms. Manzano also held the positions of Chief Quality Officer at NYP and Chief Operating Officer for NYP/Allen Hospital and prior to joining NYP in 1998, she held various leadership roles at several New York area hospitals.
Ms. Manzano obtained a Bachelor of Science in Nursing, Masters in Nursing Administration and an Advanced Post Graduate Certificate in Human Resources from New York University. She attended the Johnson & Johnson-Wharton Fellows Program for Nurse Executives at the Wharton School and holds an Advanced Nursing Executive National Board Certification. Ms. Manzano is a Fellow of the American Nursing Academy and the New York Academy of Medicine. She was President of the American Nurses Foundation and is currently the Vice President.
From Low Blood Pressure To Bladder Problems: A Look At Lesser
Parkinsons can affect the automatic and involuntary functions our bodies perform, like heartbeat and digestion. In this episode, experts discuss common but lesser-known Parkinsons symptoms including bladder problems, constipation, low blood pressure and sweating and what you can do to treat them.Recently diagnosed with Parkinsons? You can play a critical role in the Parkinsons Progression Markers Initiative study. Connect with the PPMI team at michaeljfox.org/podcast-ppmi-sitesThe online part of PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at michaeljfox.org/podcast-ppmiLike our podcasts? Please consider leaving a rating or review and sharing the series with your network. apple.co/3p02Jw0
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Conflicts over credit and control of research are far from rare in the chase for medical breakthroughs. But rarely do such fights with high stakes for professional stature, organizational prestige, and fundraising erupt into public view.
The trial offers Moussa, a little-known scientist, a chance to vault into the top ranks of researchers, while Fox and its collaborators could reinforce their standing and tap into a bonanza of donations from wealthy philanthropists and worried patients.
The episode also highlights the tension between scientists and foundations that are no longer content simply to dole out money. Following the lead of the colossal Bill & Melinda Gates Foundation, major medical research philanthropies increasingly seek to coordinate or manage studies, or control details of how they are done vexing many grant recipients.
In this case, the clash involves nilotinib, a cancer drug tested by Moussa and his colleagues in 12 Parkinsons patients many of whom described substantial relief from symptoms such as shuffling gait and cognitive decline. Although the trial was small, the results announced last year thrilled doctors and patients who have waited decades for a glimmer of success.
The talks fell apart when Brian Fiske, the foundations senior vice president for research, told Novartis, nilotinibs maker, that Fox disavowed the Georgetown project.
Michael J Fox Foundation For Parkinsons Research And The Parkinson Alliance Announce Transition Of The Parkinsons Unity Walk
- Parkinsons Unity Walk annual fundraiser that gathers thousands from the PD community in Central Walk to transition from The Parkinson Alliance to Michael J. Fox Foundation as of October 1, 2022
- Unity Walk staff will work closely with the Foundation in first year to maintain continuity
- Goal is to streamline and grow mission of Parkinsons Unity Walk to support the broad needs of the unified Parkinsons community
NEW YORK The Michael J. Fox Foundation for Parkinsons Research and The Parkinson Alliance announced today that the Parkinsons Unity Walk a fundraising event held each April in New York Citys Central Park will be hosted by MJFF starting in 2023.
The goal of the Unity Walk has always been to bring a unified Parkinsons disease community together around a shared goal: to cure Parkinsons. Since its inception in 1994, the event has dramatically scaled from 200 participants in its first year to 11,000 around the United States and more than 30 countries by 2019. To date, the event has fundraised more than $29 million for Parkinsons programs and research. In order to meet the growing scale of the Unity Walks mission and reach more people impacted by PD, the Unity Walk Board of Directors has decided to transition the event to MJFF in order to leverage the Foundations robust engagement onramps and network.
Sustaining the Unity Walks Tradition of Uniting the PD Community
About The Michael J. Fox Foundation for Parkinsons Research
Media Contacts:
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The Michael J Fox Foundation For Parkinson’s Research Honors J Timothy Greenamyre Md Phd With Robert A Pritzker Prize For Leadership In Parkinson’s Research
NEW YORK, Nov. 1, 2022 /PRNewswire/ — The Michael J. Fox Foundation for Parkinson’s Research has awarded the 2022 Robert A. Pritzker Prize for Leadership in Parkinson’s Research to J. Timothy Greenamyre, MD, PhD, Professor and Vice-Chair of Neurology and Director of the Pittsburgh Institute for Neurodegenerative Diseases at the University of Pittsburgh. The prize recognizes researchers who make exceptional contributions to Parkinson’s disease research and are committed to mentoring the next generation of Parkinson’s scientists.
“Dr. Greenamyre stands out for his expansive research in Parkinson’s disease, especially on the intersection of genetics and environment. This science has and will continue to resonate through the field,” said MJFF’s Executive Vice President, Research Strategy Todd Sherer, PhD. “Beyond that, there’s a broad network of people that he has mentored who are continuing to make significant impact in Parkinson’s. He always treated that group as a family and empowered them to make meaningful progress in the field.”
Sherer, a mentee of Greenamyre’s who worked in his lab at Emory University before starting at The Michael J. Fox Foundation in 2004, is part of that family. He presented the prize to Greenamyre at the Foundation’s Research Roundtable event in New York City on October 29, 2022.
About the Robert A. Pritzker Prize for Leadership in Parkinson’s Research
About The Michael J. Fox Foundation for Parkinson’s Research
See Michael J Fox And Christopher Lloyd Reunite For Back To The Future Merch
For those Back to the Future aficionados who cant afford a souped-up DeLorean, Michael J. Fox and Christopher Lloyd are teaming up for something special for the fans.
The erstwhile Marty McFly and Doc Brown have reunited to launch their first official line of BTTF merchandise.
This collaboration is for the fans, Fox says in a press release. We kept hearing they wanted more options to celebrate their Back to the Future devotion and we thought these items were perfect. Enjoy it. Heavy.
The limited-edition collection includes T-shirts, hoodies, hats, posters and autographed collectibles celebrating iconic moments and phrases from the sci-fi classic. Highlights include:
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Outta Time Since 85 T-shirt , long-sleeve tee and poster featuring Marty, Doc and the DeLorean, as well as a poster autographed by Fox and Lloyd
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Nobody Calls Me Chicken T-shirt and long-sleeve tee featuring Marty and his hoverboard from BTTF2
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Enchantment Under the Sea T-shirt and long-sleeve tee celebrating the films fateful dance
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This Is Heavy T-shirt and hoodie featuring a stylized image of Marty
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1.21 Gigawatts T-shirt and hoodie with a panicked Doc Brown
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The Future Is What You Make It T-shirt and hoodie with Doc Brown superimposed over Hill Valleys famously busted clock face
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Outtatime T-shirt and hoodie featuring the time-hopping DeLorean
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McFly logo embroidered hat
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Outtatime logo dad hat
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