Motivation To Write Five Steps To Recovery
I have always wanted to make a large contribution to the research world. My prior research as a scholar has;certainly been well received. ;Other researchers cite my published articles. But;in my humble opinion,;the;body of my research has not made a;significant contribution to the;world of science. ;What will be the difference that makes a difference for me?
Help thousands of people with the symptoms of Parkinsons feel significantly better! Five Steps to Recovery is one of the contributions; I have proudly make to support this lifetime goal. Five Steps to Recovery is the foundation for anyones recovery from Parkinsons Disease.
Many people discover one therapy or another that helps reverse their symptoms by 25%, perhaps 50% or even 75%. But many call me and ask why am I not symptom free now? My response to persons who ask such questions is to suggest a transformation of thoughts that are not serving their best and highest good
What Is Parkinsons Disease
Parkinsons disease is a progressive brain disorder that affects mobility and mental ability. If you or a loved one has been diagnosed with Parkinsons, you may be wondering about life expectancy.
According to some research, on average, people with Parkinsons can expect to live almost as long as those who dont have the condition.
Why Is The Cost Low
People tell me that I should be charging hundreds of dollars for this work, but the purpose of creating the book and recording the; meditations has nothing to do with money. It has everything to do with helping people who currently experience the symptoms of Parkinsons feel better. My true reward comes when I have been able to document the successful recovery of thousands of people with the symptoms;of Parkinsons who have transformed their thought patterns. This is the work I have been doing on myself and I am here to tell you that the exercises and meditations have worked miracles on my own ability to manifest energy, health and happiness in my own life.
Recommended Reading: Does Parkinson’s Make You Tired
If Someone Did Not Have Parkinsons Before Is It Likely That They Will Develop It After Recovering From Covid
Dr. Okun: We do not have the numbers on how common it is to receive a Parkinsons diagnosis after recovering from COVID-19. There are several intriguing papers on how COVID-19 may affect the brain and how it may possibly contribute to Parkinsons risk. At this point, we caution the public and researchers not to speculate until we have more data.
What Will A Cure For Parkinson’s Look Like
Because Parkinson’s varies so much from person to person, there may not be a single ‘cure’.
Instead we may need a range of different therapies to meet the needs of the individual and their specific form of the condition.
This mix may include treatments, therapies and strategies that can:
- slow or stop the progression of the condition
- replace or repair lost or damaged brain cells
- control and manage particular symptoms
- diagnose Parkinson’s at the earliest possible stage.
And this could involve medical treatments, such as drugs and surgical approaches, as well as lifestyle changes, for example to diet and exercise.
Read Also: Life Expectancy Parkinsons
What Lifestyle Changes Can I Make To Ease Parkinsons Symptoms
Exercise: Exercise helps improve muscle strength, balance, coordination, flexibility, and tremor. It is also strongly believed to improve memory, thinking and reduce the risk of falls and decrease anxiety and depression. One study in persons with Parkinsons disease showed that 2.5 hours of exercise per week resulted in improved ability to move and a slower decline in quality of life compared to those who didnt exercise or didnt start until later in the course of their disease. Some exercises to consider include strengthening or resistance training, stretching exercises or aerobics . All types of exercise are helpful.
Eat a healthy, balanced diet: This is not only good for your general health but can ease some of the non-movement related symptoms of Parkinsons, such as constipation. Eating foods high in fiber in particular can relieve constipation. The Mediterranean diet is one example of a healthy diet.
Preventing falls and maintaining balance: Falls are a frequent complication of Parkinson’s. While you can do many things to reduce your risk of falling, the two most important are: 1) to work with your doctor to ensure that your treatments whether medicines or deep brain stimulation are optimal; and 2) to consult with a physical therapist who can assess your walking and balance. The physical therapist is the expert when it comes to recommending assistive devices or exercise to improve safety and preventing falls.
If You Have Difficulty Swallowing:
- Sit up while eating.
- Ask for a speech-swallowing therapist.
- Alert staff that your medications may need to be crushed and administered through a tube. Make sure medications are administered one hour prior to meals or feedings, especially if medications are crushed.
- There is a dissolvable form of carbidopa/levodopa called ParcopaÂ® that can be given by placing on the tongue.
Don’t Miss: What Foods Should Parkinson’s Patients Avoid
What Are The Differences Between Available Vaccines
Dr. Okun: Moderna and Pfizer vaccines are distributed in the U.S. and in other countries, with 94 and 95 percent effectiveness. Both require two dosages and need to be stored at incredibly low temperatures the Pfizer vaccine requiring an even lower storage temperature than the Moderna vaccine making distribution and storage a challenge. These two vaccines belong to a new treatment approach called messenger RNA vaccines, which create a COVID-19 defense system.
Other vaccines are in development around the world and most work more like a traditional vaccine . They send instructions through DNA, teaching the immune system how to respond to COVID-19. There are several vaccines in early development, but these have the most available information:
- OxfordAstraZeneca: distributed in the U.K. with ~70 percent effectiveness. It works in two dosages. The major benefit to this vaccine is that it can be stored at refrigerator temperatures. The vaccine may be more effective if a weakened first shot is followed a few weeks later by a standard dose.
- Sinovac;and Sinopharm: created in China with ~78-80 percent effectiveness using two dosages. There is limited data on these vaccines. Sinovac is currently in late-stage trials in other countries.;
- Sputnik V: distributed in Russia and works using two dosages. Early reports are of ~92 percent effectiveness. However, there is limited data on this vaccine.;
Q: My Husband Has Pd With Moderate Symptoms Normally He Is Independent With All His Activities Although He Walks Slowly One Day His Symptoms Worsened Dramatically And He Was Not Able To Walk I Took Him To The Er Where He Tested Positive For Covid
A: In general, people with PD and other brain illnesses often have 1) worsening of their PD symptoms in the face of inter-current illnesses such as COVID-19, and 2) have a slower recovery to their baseline once they have recovered from the inter-current illness. It sounds like both of these have happened to your husband. However, with proper rehab and some perseverance, there is hope that he will slowly return to his baseline.
Don’t Miss: Can Agent Orange Cause Parkinson’s Disease
I Have Parkinsons And Blood Pressure Issues Should I Be Worried About Getting The Vaccine
Dr. Okun: No. You will most likely be sitting when you get the vaccine, so if you get faint or have a change in your blood pressure you should be okay. Stay hydrated; it will help with changes in blood pressure. Take a water bottle and a snack with you. You will likely be asked to sit in a waiting area for 15-20 minutes after each shot to make sure you do not have a reaction. If you can drink a small bottle of water either immediately before or immediately after the shot, we believe this is a good idea, especially if prone to fainting.
To Slow Or Stop Disease Progression
The researchers found that the BMP5/7 protein hada significant protective effect against the misfolded alpha-synuclein proteins.
According to senior study author Dr. Claude Brodski, of the Israel-based Ben-Gurion University of the Negevs Department of Physiology and Cell Biology, We found that BMP5/7 treatment can, in a Parkinsons disease mouse model, efficiently prevent movement impairments caused by the accumulation of alpha-synuclein and reverse the loss of dopamine-producing brain cells. He continues:
These findings are very promising, since they suggest that BMP5/7 could slow or stop Parkinsons disease progression. Currently, we are focusing all our efforts on bringing our discovery closer to clinical application.
The universitys technology transfer company, BGN Technologies, is currently looking to bring the development to the market.
Dr. Galit Mazooz-Perlmuter, the companys senior vice president of bio-pharma business development, notes that There is a vast need for new therapies to treat Parkinsons disease, especially in advanced stages of the disease.
Dr. Brodskis findings, although still in their early stages, offer a disease-modified drug target that will address this devastating condition. We are now seeking an industry partner for further development of this patent-pending invention.
Don’t Miss: Is Parkinson’s Disease A Disability
General Points To Be Aware Of When Entering The Hospital
- Provide a list of your medications with exact times, frequencies and dosages. Share your knowledge about PD, including on-off fluctuations and the importance of taking medications at specific time intervals.
- Bring medication in original bottles.
- Know which drugs can worsen the symptoms of PD
- Research study participants should provide information about experimental drugs. Inform the study coordinators that you are in the hospital.
- Speak up when medications are wearing off.
- Do not take medication on your own. Unless you have prearranged permission, the staff should administer all medication.
- Tell the staff if you have a implant. Bring the access review or magnet device to turn the stimulator on and off.
- Inform your neurologist that you are in the hospital. Provide your neurologist’s phone number of your neurologist to your hospital doctor.
- Be mobile, especially during prolonged stays! Walk around as much as possible. Inquire about physical therapy or occupational therapy.
Q: I Received The Covid
A: The vaccine is certainly able to cause short term side effects of fatigue, aches and even fever. There isnt extensive data yet on how it affects PD symptoms, just anecdotal data.; For some people, PD symptoms are worse in the short term. This does not mean that your PD has progressed, and I would expect that you will return to your previous baseline in the next few days. I would talk with your neurologist about your worsened tremor as well.
Also Check: How Soon Will There Be A Cure For Parkinson’s
Do People With Parkinsons Get Priority Access To The Covid
Each state has its own process for rolling out the vaccine to different population groups. If you would like to advocate for people with Parkinsons to be part of a priority group, we encourage you to contact your elected officials. We have created a letter that you can personalize and send them either by mail or electronically.;
Tale Of Two Former Schizophrenia Patients
The lives of Dan Fisher and Moe Armstrong illustrate the possibilities of recovery from schizophrenia. The two men have a lot a lot in common: They are neighbors in Cambridge, Mass., they are the same age, they both work with psychiatric patients, are well-known mental health advocates and they both have been hospitalized for schizophrenia. By any measure, Fisher has recovered completely. Armstrong is the first to say he has not.
Fisher’s unusual odyssey from schizophrenic to psychiatrist embodies the most optimistic vision of recovery.
For the past 28 years, Fisher said, he has taken no psychiatric medication. He has not been hospitalized since 1974, when he spent two weeks at Washington’s Sibley Hospital. He has been married for 23 years, is the father of two teenagers and shuttles between a community mental health center where he has worked as a psychiatrist for 15 years and the National Empowerment Center, a nonprofit consumer organization he helped found a decade ago. A few weeks ago he attended a White House meeting on disability issues.
Fisher was first diagnosed with schizophrenia in 1969. Armed with an undergraduate degree from Princeton and a PhD in biochemistry from the University of Wisconsin, he was 25 and investigating dopamine and its role in schizophrenia at the National Institute of Mental Health when he suffered his first psychotic break.
He received no treatment but developed an addiction to alcohol and drugs.
Recommended Reading: Do Parkinson’s Symptoms Come And Go
Butyric Acid And Niacin
- Robert HarrisParticipant
I wonder if anyone has an up to date report on butyric acid fighting Parkinsons from the intestines, and on niacin fighting inflammation in the gut caused by Parkinsons? Ive just recently glanced at articles from the miracle cure types and from respected authorities, such as NIMH.
- May 12, 2020 at 2:09 pm#18587
I would be interested to find out too.
- May 12, 2020 at 5:52 pm#18593Participant
I tried butyric acid, noticed no effect but this was just me, maybe the dose was wrong .
- January 10, 2021 at 12:07 pm#20059Beth T BrowneParticipant
I saw my Parkinsons doctor last week. ;I told her about some having good results from using these items. ;She was not recommending it. ;She didnt say it was harmful, she just said it usual provides a false result, like when tests give some the real medication and others receive a fake one.
- July 26, 2021 at 3:50 am#21424
I am now taking butyric acid again and ;finding it helps me to feel better
Youre welcome George ;do keep us posted on what you find
I take niacin and butyric acid supplements. It has reversed my Parkinsons. No more tremors, anxiety, movement dreams, difficulty writing, feeling hot, brain fog.
I take 12 pills a day of butyric acid supplements, six in the morning and six at night.
WOW amazing thanks for the feedback !
Have either of you tested to see why you are not producing butyrate?
I Have Psp The Neurologist Said: ‘i Can’t Do Anything For You’
It was his eyes clamping shut that first prompted Keith Swankie to talk to his doctor. The supermarket manager was 38 years old and never imagined that the bouts of blindness were the first symptoms of a rare condition that will eventually kill him.
Swankie has a disease that hardly anyone has heard of: progressive supranuclear palsy . Often confused with other neuro-degenerative conditions such as Parkinson’s disease, PSP is more commonly found in postmortems than during life. It is the disease that actor Dudley Moore had, and is caused by the progressive death of nerve cells in the brain, causing difficulty with balance, movement, vision, speech and swallowing.
Diagnosing PSP before death involves piecing together a jigsaw of clues, ruling out other conditions and,;in Swankie’s case, a perceptive GP. His initial referral to a specialist brought no answers. “The neurologist said: ‘I can’t do anything for you’,” recalls the father of two.
Then came new symptoms: falls, tremors, difficulty speaking, troubled sleep, irritability. It was only when Swankie’s GP was at a conference where a geriatrician was talking about PSP that the pieces started to fall into place.;Tests followed and, in April 2012, more than two years after those initial eye problems, Swankie was finally diagnosed. At last he had a name to put to his list of increasingly distressing symptoms but the diagnosis meant having to accept that he was dying.
Recommended Reading: What Kind Of Pain Is Associated With Parkinson’s
Can Parkinsons Disease Be Prevented
Unfortunately, no. Parkinsons disease is long-term disease that worsens over time. Although there is no way to prevent or cure the disease , medications may significantly relieve your symptoms. In some patients especially those with later-stage disease, surgery to improve symptoms may be an option.
Future Applications For The Drug
Nancy Wexler, who originally identified the mutation responsible for Huntingtons in 1993, says shes ecstatic about the discovery. A previous study done by Wexler was key to identifying the gene. Wexler and her team went to Venezuela where she conducted rigorous research and identified 18,149 individuals with Huntingtons disease. These subjects spanned 10 generations, and the study went on for four decades. Wexler is excited about the discovery because it means that for the first time it is possible to give those diagnosed with Huntingtons disease some kind of hope.
Anyone who wants to pretend that your Huntingtons disease is an invention is someone who does not have your best interests at heart. Mallory Ortberg
The dream of the research team is that the drug may even make reversing the damage done by the disease possible. Similar studies done on animals have found that halting the production of the mutant protein actually allows the brain to begin healing itself. It doesnt just halt the progression of the disease.
Mallucci argues that the cause of these diseases is less-understood than Huntingtons disease, so it may be a while before the research that would allow these diseases to be tackled with gene-silencing comes to fruition. That said, in principle, any gene which affects disease progression and susceptibility can be modified, so continuing to pursue research down these roads is very important.
Also Check: Does Parkinson’s Show Up In Blood Work
My Mother Has Parkinson’s Disease And Was Recently Hospitalized However She Seems To Be Moving Much Worse In The Hospital Than At Home Why Is That
Several explanations are possible. When patients with PD are hospitalized with an infection of some kind, whether it is the common cold, pneumonia, or a urinary tract infection, they often feel their PD symptoms are worse. Increased tremor or more difficulty walking may be noted. When the infection is treated, their symptoms generally improve.
Patients with PD who have an infection can experience more difficulty with swallowing, so that food goes down into the lungs, causing an “aspiration pneumonia,” which may further impair swallowing ability. A speech pathology consultation can be useful to formally assess swallowing and make dietary recommendations. Additionally, a respiratory therapist consultation for “chest PT” may help patients mobilize the sputum and make it easier to cough.
Another possible cause of worsening symptoms is the addition of new medications. Common offenders include certain antipsychotic drugs or antinausea drugs commonly prescribed in hospital settings. Other medication may be substituted.
All patients with PD should be as active as possible in hospital. Moving around not only tones muscle, it allows faster recovery and prevents decomposition of the skin from staying in one position for too long. You may have no choice if your doctor orders you to bed rest; then, physical therapy should be ordered. Some patients may also need rehabilitation at a rehabilitation hospital or a nursing facility before being discharged home.